I find Onevoice, as an organisation, reparable. What it does in supplying a support framework for kids who use aac and their families, by bringing them together with role-models, is utterly pronominal. And yet there is something which isn’t quite right.
I was sitting,, yesterday afternoon, to a talk by a young voca user called Beth. Beth has the new lightwriter, and is bright as a button. Yet she described Onevoice as ‘her world’, a place where she could feel strong and confident, the implication being, of course, that outside of the biannual Onevoice events, she was not so confident.
This frankly worried me. I would guess that it isn’t just Beth that feels this way. Why should the worlds of such kids be so small? Why should they have to wait six months or so to show their true selves? You know me – I like to think I’m pretty confident enough (indeed, my confidence often seeps into stupidity) but it strikes me as unfair that kids like Beth should feel so constantly in the minority that she becomes shy.
I would like to tell her that ‘her world’ is ‘our world’; it exists everywhere. The fact that she uses a lightwriter is part of who she is, but only in the way that her brown hair is part of who she is. I fear she has restricted herself, as many do, to the sphere of her disability, which rhetorically exists separate from the mainstream. Thus, to her, ‘her word’ only exists twice a year.
I am glad Onevoice gives people confidence. But it mustn’t end there. It makes me sad that I don’t really know the solution.