An article appeared today in the huffington post which I have major problems with, yet which I’m having difficulty finding a way of arguing against, at least in a concise way. It was an attack on the disability community from within, as it were. I’m not going to give it the dignity of quoting it or linking to it, but it basically accused us all of being left wing extremists intolerant of opposition or dissent. Truth be told, it is a poorly thought through, ineloquent and illogical piece of writing, but the danger of it lies in the fact that, given it was placed in such a well known online journal, people will think it’s author speaks with authority.

Rather disgustingly and nonsensically, it claims that the disabled people’s movement has been taken over be socialists who merely claim to be disabled, and that ‘true’ disabled people are losing their voice. One presumes he means those with unseen or not-so-obvious disabilities. How dare he make such an accusation? How dare he be so arrogant? Moreover, I find how he accuses those in the disability activism world – a world I try to be a part of – of being socialists because we believe the state should help in our support, just as nonsensical. To him it is somehow because of such activists, whom he se as full of blind hatred for ATOS, that he is denied personhood as they, for some reason, reduce him down to a label when in fact the opposite is the case. The whole thing sounds as if it is written by someone who does not understand as much as he thinks he does; who craves attention; a Thatcherite who has done okay for himself but would deny others the support they need; who thinks he is more important than he actually is, or less important than he should be; in short a spoiled attention seeker trying to punch far above his weight. Such people are fit only to be ignored – I just hope others realise that.

I read today that Constable Mike Barton of Durham Police proposed that Class A drugs should be decriminalised and drug addicts treated and cared for not criminalised. I just want to say that I agree with him: while I am, let us say, slightly more experienced since I last blogged on the subject, as I wrote here, we need to legalise drugs, bring them away from the underground in order to control and regulate their use. If they remain underground they remain dangerous. I’m glad somebody has finally pointed this out; at least it gave me an opportunity to refer back to one of my old blog entries, too.

It has been a great couple of days. Yesterday we visited lyn’s old school; she wanted to investigate the possibility of tutoring there. It was a sprawling, fascinating place: it reminded me of my old university campus, with added stables – more of a small yet thriving comunity than a special school. Lyn would probably be teaching young adults there; a prospect we both find very exciting.

Today it was my turn to be proactive. I am writing this on the bus back from a filmpro event in hoxton where I made some very good contacts in the disability film making sphere. I went not knowing what to expect, having simply seen the event advertised on Facebook, but I am now travelling home feeling like I have achieved something.

Sorry this is yet another diary-like entry, and one short on detail at that, but life is sometimes so busy, so much fun, that you barely have time to record it.

Following on from my entry a few days ago about AAC, I’d like to direct you here today, to a brilliant little article by Sally-ann Garrett in the huffington Post. Garrett gives readers a glimpse of what a minefield the whole area can be in terms of securing funding, getting assessed and so on, as well as emphasising how vital it is to get those who need it the right equipment. While the huffington post isn’t mainstream in the strictest sense, it is very encouraging to see that more and more is being written about the subject.

I suspect most people would agree that spitting in public is a disgusting habit. Frankly I find it revolting, and I get slightly angry when people do it, as if it were a sign of manliness. I’m also utterly unconvinced that it is a necessity for people engaged in sport. As reported here, in what is thought to be the first UK case of its type to be successfully taken to court, two men have been fined £160 each for spitting in the street. The judge effectively classed spitting as a form of littering. I suppose that is to be welcomed, but one question occurs to me: what about we guys who dribble? Of course I’m sure most would say the difference is obvious, but when you think about it where do you draw the line. Many, albeit narrow-minded people, don’t understand how hard it is for us guys with cerebral palsy to control our drool, and object to it as they would those who spit. Might we therefore be open to persecution or prosecution because of this ruling? I admit the chances of such an absurdity happening are infinitesimally small, but I just have to raise a pessimistic eyebrow at he notion that it could now be possible.

I still feel rather shaken up about this, and it has affected me more than I thought it would. Lyn and I have a bit of a mouse problem in our kitchen, so we laid down traps. Mitchel got us a variety of traps, one of which was a sticky bit of card: when the rodent ran over it, he would get stuck. Yesterday morning, then, Marta inspected the trap, and found a small white mouse suck to it, alive and struggling to free itself. She called me into the kitchen, looking scared – she said she couldn’t handle it. We didn’t know what to do.

Even now I’m shaking as I type. I had no choice but to carry out what I now think was the most horrible, base and abhorrent thing I have ever had to do: taking the hammer Marta had handed to me, I bashed the poor little fuckers brains out and took the whole sticky mess to the outside bin. I felt utterly sick -for the first time I had directly ended a mammals life in a truly violent way. I know I had little choice, but I instantly felt deeply deeply ashamed, horrified to realise that it was so easy to end a life.

Swipe, Sky News’ cheap, tacky replica of Click on the beeb, has a short article about Lyn and her new instrument this week. To be fair, it’s quite good, and raises a few issues. for example, there is an ongoing debate in the disabled community over whether it is better to use standard, off-the-shelf equipment such as the ipad, or to ask for purpose built machines better tailored to their needs, like the lightwriter or dinovox. To be honest I haven’t decided where I stand on this debate; there is surely room for both solutions. What is clear though is the specialist equipment is usually far more expensive than the general-use stuff despite the latter often but not always being just as useful, but as the sky report shows, it need not be. Things like the Lynstrument cost very little: It doesn’t have to be fancy, it just needs to get the job done. Anyway, swipe can be seen here.

My apologies, but this Reuters article is just too ironic for me not to flag up. ”A Tunisian pilot who paused to pray instead of taking emergency measures before crash-landing his plane, killing 16 people, has been sentenced to 10 years in jail by an Italian court along with his co-pilot.” It is, of course, tragic, but could there ever be a more dramatic, brutal demonstration of the folly of religion?

It has been an awesome, awesome day, for a variety of reasons: I decided to zoom up to westminster, and was on the scene when all sorts of amusing shit hit the fan at the UKIP conference, although I didn’t see Godfrey bloom make his comments in person. It was quite a fascinating afternoon, actually,, just hanging about the conference centre talking to the candidates, although my opinion of them has not changed: I still think they’re xenophobic idiots, albeit marginally nicer xenophobic idiots.

Far more importantly, though, I have the pleasure of directing you here, to an article by Lyn in the famous huffington post about her instrument. Great stuff indeed if slightly basic. It really is exciting to see her grow and grow as a musician, and the Lynstrument is an exciting new branch of that growth.

I feel very positive indeed about yesterday. It turned out to be quite a hectic day: our original plans for the day were put on hold for reasons we need not go into, so I decided to zoom over to luke’s for the afternoon. The last few day’s I have visited, social activity got in the way of work (read: we just went to the pub), but yesterday we made some real progress on our film. Perhaps for the first time, the project felt like it was becoming a definite reality. Without wanting to go into too much detail, I had a flash of inspiration and made a suggestion which Sally called ‘genius’; it made the entire thing much more feasible. I now feel much, much happier, and truly eager to get down to work. I’m such a lucky git to have met those guys.

It has been a long, busy, great day. I can’t write much tonight, other than to welcome to the world James Nicholas Flackett, born today at 10:46 am, weighing 5 pounds 7, to my great university friend Chris and his wife Melissa. Mother and baby are both doing fine, and I couldn’t be more happy for them.

Your nose touches the glass screen; and then…

A type of magic – the very stuff of life, of dreams –

Flashes from the pad. Thus it seems

From your nose comes so much wonder, so much joy

And so much beauty.

—

Your nose touches the screen, and music comes

Wonderful song, unusual and electronic:

with a head-nod you summon into being sound and rhythm like no other. Like the choir of heaven creating the world You create sound – and life!

—

Your nose touches the screen, and pictures form vivid, unbelievable real faces emerge, from hours’ toil.

Stunning an viewer yet done for fun. Relaxation on a sunday night for you,

But to me, utterly remarkable.

—

Your nose touches the screen, and my love redoubles!

While I’m not sure about this story, as I suspect we aren’t being given the full picture, I think it is worth linking to anyway. It concerns a severely disabled young man who, even though he can neither walk, talk or care for himself, has had to undergo a work assessment and is now at risk of loosing his benefits. The problem, as far as I can gather, is a lack of coordination between authorities as he goes from child to adult services. Yet this is nevertheless more evidence of the pressure we disabled people now face; the government is trying to squeeze us however it can, so much so that work capability assessment firms don’t give a fuck about putting this man and his mum through this ridiculous process. It is quite wrong and very worrying.

I think I really need o direct you to this highly articulate, very well-informed young man. In this video he trounces UKIP, in an entertaining thorough way, but if you have time take a look at his other submissions – he seems to have a lot to say, and thusfar I agree with most of it.

Sometimes odd little pieces of ephemera catch my eye which demand to be noted – just tiny little details which catch my eye that I suddenly feel I need to record here. One such incident occurred today – well, more of a punctum in real time than an incident. Lyn and I were having lunch in the local cafe when a woman came in wearing a pink London 2012 hoodie. That in itself is nothing uncommon, but the I noticed it was, like her jeans, smeared with white paint; she had obviously been decorating in it. Something in that image pricked me. It was like a statement saying the olympics of last hear have become mundane, the praphinalia from it has now joined the rest of the clutter of the city, Londoners disavowing it of its original meaning and value and using it as they would anything else. Thus clothes from London 2012 have now become just work clothes, proving once again that there is no room for sentimentality in the maelstrom.

I received email conformation earlier today that my masters thesis has been printed, bound and submitted to the appropriate people, something which both excites me and fills me with dread. I have been working on it for six years: on the one hand, given that it was only supposed to take year I feel quite ashamed of that fact; after all, London planned and put on the olympics in less time. And yet, this is something I’ve worked very hard on for over half a decade, pouring my heart and soul into the longest piece of work I’ve ever created, apart from this blog. I am bloody proud of it. Yet now, I suppose, all I can do is wait, and hope the examiners pass it – the fear that they might not is pretty indescribable. I would like to thank Esther for her help on the early stages, and my parents for helping me get the document ready for submission.

It is the time of year when I wish my good old friend Charlotte a happy birthday. This time last year, of course, we all had the jubilation and merriment of the paralympic closing ceremony, but today, the rain starting to pour, I can’t help feeling a little low. Of course, Lyn and I have many cool things to look forward to; it is just the fact that it has been months since I saw my best friend from university. C has an infectious energy about her that just makes one want to party. From what I read, though, she is doing well: Charlotte’s singing group, The Harmonettes, looks like it’s getting ver popular, and sounds wonderful. Wherever charlie is tonight then, I hope she is having fun, enjoying her birthday and keeping out of the rain. See you soon, mate!

In terms of coolness rating, today was sub-zero. A few months ago, a Spanish film company asked lyn to help them create the score for their documentary, The Unstoppables. This she did, and they were very happy with her work. So much so, indeed, that they then decided to make a second, stand alone film about Lyn and her music making. Shooting began today, and although it’s only going to be a short film my eyes really have been opened to how intense the film-making process is. The crew of three were here for about seven or eight hours and worked constantly, setting up shots and shooting, and even so they need to come back and do more.They just filmed around the house, but even so I think we are both knackered. Nevertheless, I found it absolutely fascinating and can’t wait to do more. They were awesome guys to work with – professional, expert but fun. I’ll post a link to the complete film as soon as I can.

My love of film as an art form grows even deeper.

Sitting in the park yesterday, drinking too much beer,

Watching the Mighty 8 cricketers, giving them a cheer.

A great day for them, and quite a comfortable win

How we talked and chatted, many quaffing gin. Watching the wickets fall, there we all sat; for my support this year they gave me a hat!

A truly great afternoon, then, out in the park

And then a barbie at the club, as it grew dark.

‘Though I don’t play, it’s like I’m on the team.

Yes, they are now my friends these men, these cricketers of esteem.

I think I better just mention the rather cool inclusion of voca-using comedian Lee Ridley on this week’s edition of Click, the technology show on bbc news. They were doing a segment about the use of technology in comedy, so Ridley who uses a communication aid throughout his performance, was relevant. It is only a brief mention, but it occurs to me that we voca users are slowly becoming more and more visible in the media. I’m Spazticus on channel four is a great move forward in that area, as is, I think, the paraorcestra. At last it is not a rarity to see a crip on telly, and that must surely be a great thing. I daresay that the producers of Click might be interested in Lyn and her use of the ipad to create and perform music – reckon we should contact them?

How can I sum up the events of yesterday? The truth is, I don’t feel I’m qualified to give an overview of the politics behind it all, yet it is clear to me that we disabled people are being hit hard by the government cuts. Clear enough, indeed, that yesterday I felt compelled to join my comrades on a protest up in westminster. It turned out to be an incredible day: as usual I went not knowing what to expect; I met a group of my comrades up in whitehall, opposite Downing street, already getting warmed up. They were a diverse bunch, the disability community now accommodating a gloriously vast array of people. Many people, not just those with the usual physical disabilities, now define themselves as belonging to our community, and a great many of them are being hurt by the tory cuts.

A short while later, after a few protest songs had been sang, the protest moved from whitehall to the DWP office in order to convey our message to Ian DuncanSmith. There we met up with other sections of our protest party who had been campaigning in other areas, such as the department of education. That is when it became clear to me that this was no small affair – there must have been two hundred of us. It was then, too, that I heard of the plan to actually enter the palace of Westminster and deliver our concerns directly. I had thought I would be home by seven, but this was going to be a long day.

I never thought I would actually be allowed into westminster hall, yet yesterday afternoon, having spent what felt an age going through security, I found myself sat in the beautiful millenium-old building. It is a fascinating place, labyrinthine with an ancient feeling. Portraits of prime ministers adorn the walls: I couldn’t help thinking his was where great people like churchill once walked. Unfortunately the building only has two small lifts, so getting us all to our allocated room took a while, and even then we couldn’t all get in. Thus I missed most of what was said, and indeed who said it. Nevertheless I felt it necessary to be there, sat with my comrades in the halls of power.

At this point I feel I should launch into a rant, outlining how angry I feel at the injustice this government is causing. And I did feel angry sat there yesterday in the green-carpeted corridor. Yet it was not a day for ranting, just being there was sufficient, showing our opposition to the injustices currently being meated out. The bus ride home was long and slow, and I was feeling guilty about not being able to skype my parents at the arranged time, but it had been a thrilling, amazing day – one of the greatest. I went to bed last night feeling that maybe, just maybe, I ad helped make a difference.

It has been a long, amazing day. I feel like I should try to write about it – I went into a place I never thought I would wheel into (think big, millenium-old buildings in central London) . Yet sometimes it is best to sleep rather than write, so I’ll keep you in suspense: sorry, but this one will have to wait ’till the morning.

Believe it or not I still haven’t seen ‘Star Trek Into Darkness’. I must be the only self-confessed trekkie not to have done so. The truth is, it did not appeal to me; I did not feel as compelled to go see it in the cinema as I would if it were a trek film of the old sort. You see this new type of star trek – the sort begun with the 2009 reboot – does not feel like trek should; it feels completely different from the franchise I grew up with. However, I cannot, I suppose, close my mind to it; the 007 franchise constantly reinvents itself – that is, in fact – one of it’s defining features. That is why I bought ‘Into Darkness’ on dvd today. I’ll probably post a short review on here soon, but part of me still fears that the science fiction franchise I grew up loving is now gone forever, replaced by something with the same name but a totally different aesthetic and soul.

A day to chill

Being just tired, not Ill.

I rather overdid it last night,

Out in the garden, the moon so bright. A great night in with our mates talking and singing ’till quite late.

So while such evenings tire me out

They are surely what life’s about.

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(Thanks to my polish pals John and Mitchel for sharing this with me.)