falling out of contact

I just waved goodbye to Charlie. She popped over from Chester for the afternoon; she was going to stay longer, but the weather has taken a severe turn for the worse., so she needed to get going. It was great to see her though. She came at Christmas last year, so we may have started something of a tradition, although it will hopefully be Lyn’s she’ll be visiting next year. It was great to see her though.

I realised, however, that Charlie is the only person I see from uni, pretty much. She’s the only person I’m in more or less regular contact with from uni, apart from

Esther. I used to have a large cohort of friends, but it now appears the links of friendship are slowly fading. I know two or three read this site, like Chris, Steve and Ricardio, but it strikes me as a great shame that, aside from charlotte, I’m slowly falling out of contact with many of my best friends. I have resolved, therefore to put that right. To start with, if you’re reading this and you know me from uni, please leave a comment or email me.

we must even debate things we do not agree with

Yesterday I was surprised to find that some people made a group on facebook criticising the bbc for opening up a forum in which people could debate the Ugandan law to execute gay people. it’s bizarre how some people, mostly on the right, use every opportunity to attack the bbc, but completely miss the point at the same time. Of course, any law to execute gay people anywhere is abhorrent*, and anyone supporting such a law must be short of a brain, but surely everything must be fair game for debate. Otherwise, things become absolute truths, beyond debate, something which I see as very unhealthy. Nothing in science is a fact: things like evolution, the idea that the world is round (like an orange!) or global warming are still theories and open to debate, although the evidence for each of these is so great that they’re very unlikely to be disproved. Nevertheless, none of these things are beyond debate, and nor should anything else be seen as such. Hence you cannot criticise the beeb for opening up debate.

What can be criticised, however, is the underlying issue. We all know, of course, that being gay is noot an abnormality, but something quite natural. Nor is it something you choose to be, but you’re either born gay or straight or bi. During the course of my googling, I found that the Ugandans are being funded by the American right, including at least two senators and several fundamentalist organisations. They are, in part, basing their biggortry on the work of an American, Richard cohen, cohen argues that gay people can be ‘cured’, that they chose to be straight if they so whish. This, of course, goes against all the psychological evidence on the subject, and indeed in 2002 cohen was expelled from the American Counseling Association for, among other things, ” seek[ing] to meet [his] personal needs at the expense of clients”. In other words, he was trying to manipulate the data to meet his own agenda. From this, and from the way in which Cohen thereafter termed the ACA a ”gay-affirming club”, we can see that this man is no scientists and is acting out of motives other than the search for truth.

Indeed, Cohen describes himself as Ex-Gay; he speaks of wanting to give people the choice to be heterosexual if they so whish. In an article entitled ”born gay? No way” in the New Statesman, Cohen states that ” I am pro-choice regarding homosexuality. If someone wants to live a gay life, that needs to be respected. If someone wants to change and come out straight, that too needs to be respected. Let us practice true tolerance, real diversity, and equality for all.” Yet beneath this message is the presumption that homosexuality is wrong, and something to be corrected. In other words, it’s fascism masquerading as liberalism, belief masquerading as science.

It doesnn’t end there. The Ugandan law is being funded and supported by American right-wing senators. Both the Ugandan ptesident and vice-president are members of a secretive American religious organisation known as ‘the family’, which has very conservative (read fascist) views on gay people. it boasts at least two US senators as members who were instrumental in steering American money to fight AIDS in ugannda into funding abstinence-only schemes. Moreover, several American churches are involved, to whom cohen is a cause celebre.

Does this not strike you as absurd? We have these crackpots in the states claiming that homosexuality is a choice, coaxing Uganda to pass an utterly biggoted law, justifying their beliefs through a mixture of quack-science and religion, and refusing to listen to anyone who tells them they’re wrong. I have many gay friends; indeed, my own relationship wilt Lyn isn’t exactly straight, is it? I am very concerned, with the most powerful state on the Earth influencing others in such an illogical, bigoted way, about where this will all end.

So of course such things must be debated, if only so we go beyond the headlines. Debate leads to research; and only through research can you find the truth. * capital punishment is barbaric for whatever reason

back for xmas

I used to aim to blog every day, but these days it seems I’m away from my computer so much that I can no longer do that. I guess it’s a good thing – I used to post just for the sake of it, and the result was meaningless prattle. Now I post when I have something to say.

Anyway, guess where I’ve been. I got back from Lyn’s this morning, having spent a week or so down there. Her place is becoming to feel like home, although I need to take stuff like my neater-eater down there. As it is, Lyn’s PA has to feed us both, which makes meals slow. Hopefully I’ll start moving stuff down after Christmas, including my pc so I can blog from hers.

Talking about Christmas, it seems my parents are planning on having pretty much all the family here. The house will be packed, and I have to sleep in the conservatory. I whish Lyn could come too, but the house isn’t really suited for a full-time wheelchair user: there are too many steps,, narrow pathways and too much clutter. I think I’ll have problems with so many people around here as it is. Yet it is a shame she won’t be here – I always go to hers; it’s time she saw the old Goodsell family house. Ho hum; I’m planning to go to hers for New Years Eve anyway.

Osbourne is a liar

I just tried to watch George osbournes reply to the chancellor, but after 5 minutes I felt so angry that I gave up. I felt sickened by his lies and insults; by the way he pretended that brown had made the recession worse, or had even caused it, rather than saving Britain from the worst of it. I’m appalled by how the Tories claim we are now the sick man of Europe when the fact is Britain has one of it’s strongest economies. We’re certainly doing a damn sight better than we were in 97, and, under the Tories, this recession would have hit us all much harder.

While it is by no means perfect, I love what Britain has become since New Labour came to power. It is more multicultural and tolerant than ever before. It is a place where we crips can live independently, rather than being shoved into homes; it is a place where more and more disabled kids are being included so that they get a decent education. I daresay that it is only in such a liberal, tolerant society that people like my wonderful girlfriend can live exactly on their own terms and flourish. Since 97, more and more people are going to university; it is only through the initiatives of labour that I was able to get my degree. Higher education is no longer the sole province of the rich.

The Tories, with their moronic talk of austerity, would undo all this. they would cut spending and lower taxes. They would return power to the upper class, and widen the socioeconomic devide. They believe the rich should rule over the poor, as if they were somehow born to rule. The argument is that, when society is left to it’s own devices, the fittest rise to the top, and so government should get out of the way. Anyone with more than half a brain knows that to be bollocks – it is an excuse to maintain wealth in the hands of the few, as it advantages the greediest rather than the fittest. That’s why I almost felt physically sick when Osbourne attacked Labour for attacking tax cuts for the rich. The Tories want to give their selves and their friends a tax cut.

I’m also wondering how the Tories have the gall to accuse labour of being obsessed with spin and appearance when they have CaMoron trying to pretend that he’s a nice regular guy, and their backbenchers trying to pretend they aren’t a bunch of closet racists and eurosceptics. The blatant hypocrisy is sickening. The Tories aren’t regular people – they see themselves as superior, born to rule; they want to impose their views on all of us. I hope with every fibre of my being that they aren’t elected next yeat/

the wedding

It is my great pleasure to announce the wedding of Luke Spencer Goodsell to Yan Chen. On Saturday, my brother married his partner, Yan, in a beautiful wedding. It was just a small event, with mostly family there. Four or five of their uni mates came. Mark and I acted as best men, which was quite cool, although I never can stand still however hard I try.

Then we went for the reception at a Greek restaurant. This seemed to last most of the afternoon, and I forget how much I had to eat or drink. I got talking to Luke’s friends, who seem hyperintelegent. Mark gave the best best-man’s speech ever – concise but very funny, embarrassing to just the right degree.

So, now my little brother is married, and the family has grown. You know, we’re quite an international bunch: Yan’s from China; Cyril’s girlfriend Saran is from guinea; we have family in brazil, the states, all over the place. How cool is that?

incredible

Today, we’re off to London for Luke and yan’s wedding. I dunno what to put here – I’m kind of lost for words. My little brother’s getting hitched. It’s just incredible.

cast-offs

I have been watching cast-offs with growing relish, I must admit. In case you don’t know, Cast-Offs is a late-night channel four mocumentary about a group of disabled people on an island, trying to fend for themselves. I find it subtle, witty and intelligent. Through flashbacks we get to know a bit about these people’s lives back home, thus sketching a portrait of life with a disability in contemporary Britain. It is also quite sardonic and irreverent, unafraid to pussy foot around subjects, or show crips can be prats too. Mind you, the central characters of the last two episodes have been berks, especially Will, played by Matt Frasier.

I watched last nights episode this morning. What struck me is will’s vitriolic politics. Beneath his showing off for the camera, and attempts to impress his son, there seems to be a real sense of anger there. He was affected by thalidomide, and we see him writing to various people for compensation. There’s nothing wrong with this, but some of what he writes is inappropriate and offensive. This got me thinking: can this sort of behaviour go too far?

I do not pretend to know much about thalidomide, save that it was a drug taken for morning sickness which effected the development of the foetus. But I do know that, just as I will never blame my parents for having me at home, one cannot demand retribution for such mistakes. To do so, it seems to me, is to repeat the folly of Ahab. While I know crips need money, I’m not sure I like this culture of blame and entitlement. People like will seem to have real chips on their shoulder, and I’m not at all sure that’s a good thing.

Anyway, the next episode is tonight at about 11, I think. I’m really looking forward to it.

the Harmonettes

I don’t have much to report today; it’s cold, wet and miserable, and I feel low. I had a look over my thesis earlier, which made me depressed. I keep finding faults and repetitions. On the brighter side, the other day Charlie sent me this link. As well as teaching, she’s in a trio called The Harmonettes. They sound quite good, I think, and I hope they go far. it’s not usually my type of music, but it sounds better to me than most of the crap in the charts these days.

being called a lightweight by a 12 year old

I am back home, briefly. I’ve been staying with Lyn for the last week, where highlights included trying to teach Karolyna the phrase ‘smeg head’ and Lyn’s neighbours birthday party on Saturday. I don’t remember too much about said party, only being called a lightweight by a 12 year old. Grr. He should have been in bed anyway. I’m off again on Thursday for my brother’s wedding, which I’m really looking forward to, although, if I’m honest, I’m slightly nervous about too. I mean: Luke, marrying? Part of me still sees him as my little-big brother, who has always cared for me. It wasn’t so long ago that we were squabbling over toys, or he was telling me to stop getting comfortable.

But Luke has turned into a man, and a damn good one at that. He is a person of honour, unafraid to do the right thing. I respect what he is doing on Saturday; I am proud to call him my brother, as I shall be to call yan my sister. I love you bro.

addendum

I should point out that my previous entry was intended to be ironic and tounge in cheeek. However, I should add that I’m still pretty angry about recent events – I do not think I was treated at all fairly. I do not want to ban kids from tthe ‘net, but some people seem to want to censor me.

the net should be 16+

Recent events have caused me to rethink my stance on censorship. I usually take a liberal position on such matters: I think everything should be open, honest and available. Take drugs,, for example: I recently found that I do not llike weed, but I didn’t know that till I tried it. Until then it was something verboten – a mystery to be fettishised. The same goes with information, data and so forth – I believe, or used to believe, that all information should be freely available to all. How else could one make informed decisions?

We all know that the internet is a great place to find stuff out as well as to share information. On the internet I can put my opinions forth, I can find information about almost anything, I can catch up with my friends and show them what I’ve been getting up to. However, the problem is that kids use the net too, and their little brains are apparently not ready for certain things. Given that kids must be protected, either we impose some kind of censorship on the net, or some kind of age restriction. In my opinion, to censor the internet would be impractical; it would also defeat it’s very purpose. I know there’s already a ban on extreme material online, as there should be, but I’m talking about things that most people wouldn’t bat an eyelid at but kids wouldn’t understand. I rather think it would be more practical to ban children from the net until their sixteenth birthday. This would be enforceable given that, before that age, most kids are around parents or teachers when using computers. We already ban buying alcohol, driving cars and having sex before that age, and using the internet can be more dangerous than any of those things.

This goes against all my instincts, but I’ve decided that the only way to protect kids online is simply not to let them online, as the alternative would make a mockery of the very concept of the net.

ID

Something odd happened in Tesco this morning: I got asked for ID. I was replacing the beer I drank over the weekend, but the staff wouldn’t let me buy any until I showed them either my passport or driving license. I had to come all the way back here to get my passport, then go back to get the beer.

This has never happened before. I don’t think I look that young, do i? from the way in which the staff were asking one another ”Is anyone with him?”, I cannot help but think that it has something to do with my disability. They were also being highly condescending. Once I got my passport, they had no choice but to give e the beer, but I am sick of being treated like a child just because I have CP,

a bizarre, often judgemental therapist

Whatever I right on here tonight it’ll be wrong. Either that or it’ll offend someone. Or I’ll be accused of lying or cheating, or being sexually explicit. Or not appropriate for kids. Or whatever. So I won’t. I’ll just say that stuff’s got pretty complicated recently, but I’m sure I can work it all out. You know, one of the risks of keeping a blog is that you risk saying something you really shouldn’t. when you try to blog every day you sometimes forget a blog isn’t a personal diary. This thing has got me into a lot of trouble over the years. And yet something compels me to tap some irrelevant crap into it every day. It’s like a form of therapy, almost, only the internet is a bizarre, often judgemental therapist.

started my Christmas shopping

I guess I’m going through the best of times, and the worst of times at the same time. As I alluded to yesterday, the 1voice thing went tits-up; long story short, I do not think they want me as a role model any more. I’m not happy, but hey. However, this left me with a PA at my disposal for the weekend, Steve. He’s been stayiig with us, and today we went down to hanley on the bus. I have officially started my Christmas shopping, and I really enjoyed having someone to hhelp out. Plus, tomorrow we are going up to see Becca again – she has promised to introduce me to a few people in the avant-garde of politics and gender and disability and all that cool stuff. Should be fun.

honoured to be involved with it.

Truth is, I can’t wait till Blackpool this weekend. while I love visiting Lyn, and I loved going to Amsterdam, Chester and London, my participation in 1voice makes me truly feel good about myself. I’d guess Lyn and Charlie get a similar feeling when they teach: the feeling one gets when helping someone. Onevoice is my opportunity to do just that: to give something back, which is why I am honoured to be involved with it.

To put it another way: I have had an awesome range of experiences, raging from, say, having dinner in paris with charlie, my uncle, aunt, brother and kat that night a year ago, to, say, partying with Lyn in a zentai suit; at Onevoice I look at the young people and get a buzz from wondering what the future holdss for them, and thinking that I might be helping them to achieve that future….only theirs probably won’t involve so many zentai suits

lyn and her cat(s)

I just got home from visiting Lyn in London. My parents went down there to see my grandmother, and thought I might prefer to spend my time with Lyn. It was cool because on Saturday night Lyn was going to a fancy dress party and so could take me along. Hwe had a great time at the party – it was the first time ii had a chance to wear my cat zentai to a party, band I tthink Lyn had fun tugging my lead (photos on facebook)

I should add that I did a lot of walking this weekend too. I couldn’t take either of my chairs, so it was either that or stay at Lyn’s place. It wasn’t too bad, actually – I used Lyn’s chair as a walking frame.

I know my blog has been sparse recently. Problem is I haven’t been here to update it much: London, Amsterdam, Chester, then London again. I should be off to Blackpool on Friday too. Truth is, I’m having a great time, even if my legs arrent used to all that walking.

bbc reporters can go outside by themselves

I was just rummaging around the internet looking for something interesting to say here, when, clicking a link from the ouch messageboard, I came across this. it’s a bbc news article covering the fact that Stephen fry ay have decided to retire from twitter over a seemingly minor disagreement with a fellow internet user. What baffles me is that the bbc decided to post a news story on it. I mean, do they have nothing better to write about? I guess the same goes for me, but I should imagine that the writers at the bbc aren’t all stuck inside with no socks on bored witless. Mind you I guess I should start getting stuff ready to go to Lyn’s this weekend. then it’s Onevoice the weekend after. I should have plenty to discuss next week.

a great night a week ago

I must admit to breaking my vow to abstain from beer this evening. Mum made liver and bacon; it was delicious, and I could not resist a real ale to wash it down. This may mean I’m an alcoholic, but what the heck?

At the end of the meal, I looked up at the kitchen clock. Allowing for the time difference, it was almost exactly a week ago that we were in that club in Amsterdam watching the man with the guitar. He also had an accordion, and he played both with vigour. I mean he seemed to almost attack the instruments, making quick, sudden, aggressive movements. It was very amusing – I do not think I have seen, or heard, anything like it.

Yet what I remember the most about that evening is that Lyn wore make-up. It mustn’t have been easy for her to put it on, but she looked gorgeous that night. I regret not telling her at the time – I was fixated by the madman on stage, and by the atmosphere. You know, that was a truly great night.

charity is bad

Friday night is children in need night. You know, I still have partial memories of being dressed up and bussed into winsford town centre as a young child in order to rattle collection buckets by school. I must have been five or six. Back then, of course, I thought it was great fun. Yet with hindsight, I see it as exploitative and repressive.

Charity represses disabled people, turning us into victims and objects of pity. We are, of course, neither, and I will decapitate anyone who says otherwise. It is true that we crips do need more support, but it should be the duty of the entire community (ie the state) rather than the conscious-placating activity of the altruistic few. That way, the implication is that we are a valued part of the community rather than a bunch of outcasts dependent on begging and handouts. There is no denying, of course, that charity is born of kindness, but in this case it is a misdirected kindness which casts disabled people as victims and outcasts rather than as an integral part of the whole. This is why my politics are to the left of centre; I do not want to be seen as a victim, but as a valued citizen.

will something come up?

It has been a slow, long day. Every year before now I’ve been at school, college or university at this time of year, so it’s weird to me at home. Truth be told I cannot help but feel rather disheartened by it all – I can’t really go out in this weather, and I still don’t have a PA to drive me places. So I’m pretty much stuck at my pc, or in front of the TV. I’d like a job, but there are none. Oh well, I’m sure something will come up. It just seems so anticlimactic after the last two weeks.

laying off drink

I think I need to make a rash decision. I need to do something which goes against all my instincts: I’ve decided not to drink for a week. That’s right – no more alcohol till Friday! I decided I need to detox. I’ve had a drink almost every night for a couple of weeks at least and want to see if I feel any better if I stay off the booze. It’s not that I feel particularly bad, but it may help to give my liver a rest after Amsterdam.

London to amsterdam via chester

I assure you that I have not died. I haven’t been eaten by a lion or run over by a monster truck or anything. I’ve just been busy – very busy. It feels like ages since I sat at this desk; so much so that the keys feel weird.

Anyway, where to start? More to the point, what to put in and take out. I feel like I’ve been all over the place, but I’ve just been in London, then Amsterdam. Last week I was at Lyn’s in London; we had a great time, as ever. I got to meet Lyn’s neighbours, dan and paula, who turned out to be excellent people. in a bizarre twist of events, a week ago last Wednesday I found myself in a taxi, with Lyn, Lyn’s p.a zita and Paula’s dad from cornwall crossing London to get my passport renewed. I had forgotten to check it’s expiry date (never knew passports went off); mum noticed as she was packing for me and quickly arranged for me to pick up a replacement in the capital. This meant a trip across the city with Lyn; but we were short of a PA. so, Lyn’s neighbours dad was staying next door, and he stepped in to avoid a shopping trip with his wife. What an awesome day that was. I also mannaged to meet James cullis down there – I’ve been talking to him for a while, and we finally managed to meet in person near the london eye.

Last Monday, new passport safely in my bumbag, I caught the train from Euston to Crewe. Dad picked me up from Crewe and took me to charlottes in Chester. I know it would have been far simpler to travel up Tuesday with Lyn, but in London I need my electric chair, but I can’t take tat thing on an aeroplane. So back up north I came, swapping bags and chairs on the way, meeting charlotte in Chester. The next day, her dad – truly a capital fellow – took us up to the airport where we met back up with Lyn and her PA Esther. And then the fun began.

As with my blog about the Paris trip, writing a step by step account would be far too tedious, although it feels like we didn’t do quite so much this time probably because it was a slightly shorter trip. Highlights included watching a dude play a guitar angrily, getting woken by some very tuneful bells every hour, and getting scared shitless by a cake. I am never going near cake from Amsterdam again. Never never bloody never! We also went to see an improvised comedy show; Charlie got us free tickets from a couple of her friends who live out there. It was a nice gesture, although I don’t actually remember much about it, but that’s another story.

We did intend to go on a canal tour too, but although the jetty had a lift none of the boats where wheelchair accessible, so that was a non-starter. I would have been OK, as I can get out of my chair, but Lyn can’t. it was a pity as I was looking forward to cuddling Lyn as we floated down the canals.

Amsterdam, then, is an amazing city: Crazy as hell, flat as a pancake and full of tourists, but nevertheless amazing. A trip with Lyn was long overdue, and charlotte once again excelled herself. I hope they both liked it; I’m pretty certain they did. Whether we’ll all take another trip together remains very much to be seen, but I certainly hope we do. We flew home yesterday, and after attending a Halloween party last night at charlie’s, my parents picked me up from Chester this morning. It’s been quite a couple of weeks.

admin and people-management skills

I think the old adage that there’s ‘never a truer word that’s said in jest’ holds especially true of this Ouch article. It’s author point out that many disabled people have acquired excellent admin and people-management skills just by managing their own lives. Many such skills are surely transferable into other areas of life. Why is it, then, that disabled people find it the hardest to find employment? I can think of two or three of my crip friends who would make excellent managers if they had the opportunity.

re-establishing old links

I enjoyed yesterday very much. You know, I’d given up on seeing Becca ever again; I kind of assumed she thought I was a prat. But no: she invited me up a few days ago in order to facilitate a meeting between me and a prospective new PA. Steve came to mine, and we headed to beccas together.

She’s living with Phoebe, her p.a. I’m not too sure of the precise arrangements, but it seems to work well. Becca is pretty much as I remembered really – still very into disability politics, rights and DAN. I’m seriously thinking about getting myself into the Manchester scene – they told me about several people, including Claire Lewis, who I’m rather eager to meet.

Becca has a very cool van with tail lift and hand controls which I may be forced to steal – it was awesome. We went to the Trafford Centre in it for dinner.. it was nice to get to know Becca again, as well as phoebe and Steve; I know things won’t be like before, and neither of us want them to be, but it felt good to re-establish old links and to create new ones.

all 6

It has been something of a nonentity type of day. Mum’s at work and dads away on business so I’ve just been stuck here at home. Did a bit – quite a lot actually – to my thesis, spoke to a few people online, but that’s about it. I guess the most noteworthy thing that happened today was that I’ve been in contact with the six women I respect the most: Becca, Kate, Charlie, Esther, Lyn and mum. Amazing!…Ok, maybe not.

events

I guess the next few days should be interesting. I go up to meet a prospective new PA on Tuesday. Interestingly, he’s a good friend of Becca, so she’s acting as a gobetween in Manchester. As well as getting a new PA, it’ll be good to see Becca again after so long.

Then on Friday I go down to see Lyn. It feels like ages since I’ve seen her, and I’ll get to spend the whole week with her. Then, a day or two after, we go to Amsterdam together.

I don’t know why it is, then, that I’ve felt so low these past two days. I’m worried about my thesis, and I’m worried about my future. I miss the freedom I had at uni. Oh well – I have Tuesday to look forward to, then Lyn on Friday. It’s getting to the stage again where I see any trip out as an event.

goodbye to the normals

This sort of reminds me of myself as a child. Whenever I got angry with my parents – basically when they’d told me off, or when I wanted some attention – I used to ‘leave home’. Off I’d go, cuddles my monkey in my hand, up the road. Unlike the kid in the film though, I used to turn back when I noticed nobody was following me. Although I did manage too petrify mum and grandma once by going missing round the mere for a couple of hours.

things are moving on

Yesterday was interesting. I went over to Crewe to meet with Alan, then to Esther’s. she invited me to a show at the lyceum called ‘That’ll be the Day’ – sort of a review of old 50s rock/pop songs. Kind of cool. I stayed the night at hers and dad picked me up this morning.

My master’s thesis is starting to move again. It should be done soon. Alan has emailed mike Pearson to be my second marker – he’s an old friend of Lyn’s at the university of Aberystwyth. I hope that counts in my favour and that he’s not too harsh a marker.

Alan seems to really think I should do a PhD. I’m still very much in two minds about it. It’s not something one undertakes lightly, and I’m not sure I’m up to it. My masters has lasted long enough as it is. Another question is what to do it on? There is plenty of room left for more research into cinephilia and fandom, but part of me wonders whether I should try to link my disability into that; it is, after all, a highly personal discourse. Another question is where – Alan says I should move on from MMU, and, as much as I love the place, I agree. But this would put the whole idea of moving to alsager on hold, unless I did it at staffs uni, stoke, and I don’t even know whether they’ll take me. I’m loathe to do that – I really want my own place as soon as possible, with my own big bed with a Lyn in it! It seems I have much to think about.

as I see it

Perhaps I better explain how I see things personally. I start with the central premise that all people are equal and are of equal worth. From this it follows that, given that we are all different, there is no such thing as ‘normal’. We do, however, have different abilities and skills. Thus I think that everyone should be treated equally, and think it unfair that some people get paid vast amounts more than others when we all contribute to society. For example, why are footballers paid so much more than teachers? Teachers are vital for education, working bloody long hours, but footballers just run around a field for 90 minutes. My views are also tainted by my disability: you don’t have to have a job to be said to contribute to society, and indeed why do you have to contribute to society to have rights? I have known people who cannot get jobs, yet have just as much right to wealth as anyone else. This leads me to a left of centre stance, with higher taxation for the rich to subsidise the poor. This leads me to believe that power must be central to regulate all this. on the other hand, it would be more democratic as everyone would have equal access to education and therefore power. We need to get rid of the gap between rich and poor in order to maximise human potential. We need to get rid of the class system and the perpetuation of wealth in the hands of the few. The contradiction, however, is this: how can we respect the rights of people to live as they whish, while at the same time imposing higher taxes upon them? It all depends on people being altruistic and putting equality before greed.

tory intentions

This morning the Tories have shown their true intent. They plan to get one in five people off incapacity benefit and into work, thereby saving £600 million. This money will then go on schemes to get people back into work. Never have I heard anything more barbaric, selfish or arrogant: the Tories seem to think that people choose to be on benefit, as if they are too lazy to get a job. Any intelligent person will know that that is not the case – most of my friends want desperately to work, but there are simply no jobs that they can do. Now we will worry that, if the Tories get in, we could get our benefits taken from us and have to live off charity.

And what are the Tories planning to do with the money they save, other than lining their own pockets? Reforms to the education system, including the introduction of more vocational schools and courses. In other words, a return to the old repressive 11+ system, where kids who failed were blighted for life. It was a system designed to perpetuate class barriers, despite Tory bull about a parity of esteem. Now the Tories are trying to justify reinstating such a system by trotting out a load of crap about ‘choice’ and the decentralisation of power, but anyone can see that that’s just a front for the same old Tory policies, coming from a group of people who thinks it’s their birthright to rule. To such people, we crips are, at best, lazy, and at worst a pest to be got rid of.

family matters

I was up in Manchester today. We had lunch with Mrs. Yu and Yan, my future sister in law. I like yan very much, not least because she sticks up for me, and I’m walming to Mrs yu. She teaches at university – not sure which – and is keen for me to write articles.

The family is growing. Not long ago, it was just us five. Now I virtually have two sisters in law, and I have Lyn, of course. We’re also spread all over the place – Luke and yan are in Muswell hill, Kat and mark last week moved from Paris to Hamburg, and I’m oscillating between Congleton and London, trying to find a home in alsager. It’s rather cool, if hard to keep track of everyone sometimes, especially when figuring in my cousins. But, as I realised after writing yesterday’s entry, at least I can always get a good meat pie and free beer here!

trapped

It seems I have a problem. I would very much like to be independent of my parents sometime soon, and I think they wholeheartedly agree. The thing is, they aren’t confident in my abilities, so this afternoon they gave me the task of writing a budget out as an exercise. At first I thought this would be easy, but I somehow worked out that my income would be £3000 per anum, my outgoing £25000. I don’t know what went wrong, and now I feel stupid. I’ll bee stuck here forever, it seems. Any suggestions where I went wrong, or how I can free myself.

enough

I have decided I’ve had enough. I’m sick of being the butt of kids’ jokes; of being laughed at. I was just rolling through the park, and there were loads of kids just staring and laughing. It is, of course, because I have cp, but I like having cp: I like rolling around in my chair; I like waking up with Lyn; I like going to visit the joneses. None of this would have happened had I not had c.p, so I’m pleased I have it. I love being me, but to these little kids being me is something to be ridiculed. I say no: it must end. I don’t know how to stop it, short of wringing the little shits necks, but I’ve had enough. I don’t want to become a ‘crip with a chip, but it’s just not fair.

Turbo tom

I just found something most amusing. I was in town doing a passable impression of Walter Benjamin when I overheard a group of the local youth talking. Although it’s very likely, I can’t be absolutely sure they were referring to me, but I think I heard one lad say ‘we call him Turbo Tom’ as they passed. This amuses me greatly.

I suppose it’s only natural: I zoom around town, rarely stopping to talk, so I’m probably something of a mystery to these kids. I suppose, too, that I should be thankful that they don’t call me anything crueller. But it’s kind of weird to realise that I’m one of those town characters who gets nicknamed, like the town drunk or local old crone.

where even I draw the line

As you guys know I try to be as liberal, open minded and as tolerant as I can be. I generally feel that people should be free to do as they wish, provided that it does not hurt anyone else. But this morning I came across a group of people which I’m having problems getting my head around: people who actually seek to cut off their own limbs. Watch this.

My first reaction is to ask why? Why would anyone seek to impair themselves? I know first hand what a bugger having to use a wheelchair can often be. I have known people without the use of their legs. So my first reaction is that they should be prevented from doing this.

If you start to think about it, it gets more interesting though. Why shouldn’t some people actively seek to join the disability community? What is the difference between this and a man going through surgery to become a woman? The people seem to desire it as much as a transgendered person desires to transition. If we crips are truly equal to everyone else, why shouldn’t some people join our ranks as a lifestyle choice?

The answer is as obvious as it is problematic. Disabled people face serious disadvantages, so much so that you question the sanity off anyone who wants to chop off their legs. Yet to admit this means admitting that being disabled is somehow inferior to being able-bodied. Mind you, one could argue that, due to sexism, a man would have to be nuts to seek to become a woman; but the counterargument would be that A) sexism is not innate but a social construct, and is diminishing, and B) all you’re doing is swapping one social and sexual role for another, with no innate loss of status or ability. In other words, unlike sexism, there is a physical dimension to prejudice against disabled people – it places you at a physical disadvantage. A disadvantage so big that I do not think that this phenomenon can be seen in the same light as any other ‘lifestyle choice’. Thus, this is where even I might have to draw the line. The problem is, this forces one into saying that having a disability is iinferior to not having one, which I cannot do.

Baldwin for UKIP leader

Late yesterday afternoon, my friend james brought something very interesting to my attention. UKIP has started the process of electing a new leader, and a guy called Daniel Baldwin has thrown his hat in. what is interesting, though, is that Baldwin has Cerebral Palsy.

Ordinarily, I try to ignore UKIP in the hopes that they might just go away. Anyone with any intelligence can see they are just BNP-lite, appealing to the fascists who don’t like to admit to being fascist, even to themselves. Their isolationist, anti-Europe policies would make the UK a pariah, but noooo, they’re not fascists. That’s just what the BNP says too.

Anyway, what, then, is this dude with CP doing in this far-right party, let alone running for it’s leadership? Of course, a person with CP can hold any views he or she likes, but in my experience having a congenital disability tends to make you open minded and tolerant. You yourself want to be tolerated, so you become more tolerant yourself. it baffles me, then, why this dude is even a contender.

Even more intriguing, though, is the prospect of him winning. I doubt this would happen, of course. The party is just too bigoted. As one UKIP supporter on a message board stated: ”Sorry to be negative but this strikes me as gesture politics. While Daniel maybe able to do a lot of good for the cause I simply do not believe that anyone with cerebral palsy is capable of leading a serious political party.” He clearly has underestimated people with cp and has confused UKIP with a ‘serious political party.”

That aside, what if Baldwin does indeed win? Firstly, I think it would just be seen as a stunt. People would dismiss it as a bit of cynical PR – as UKIP trying to appear nice and tolerant. Yet this might, in turn, split the party between those who crave validation as a modern progressive party and those who want it to reject tolerance and cling firmly to the far right. Moreover, if I’m right about people with CP generally being more tolerant, Baldwin (who, I should add, used to be in new Labour) will probably try to steer the party back towards the centre. The combined effects of this, I think, will be catastrophic for the party, causing all sorts of in-fighting and fracturing along ideological lines, which might just send the bunch of morons over the brink into political oblivion.

Let’s all look forward to the election of the first party leader with cerebral palsy.

I know I’ve written about this before, but…

I do not know why the Americans are so scared of healthcare systems line the NHS. Apparently, they seem to think it would involve panels of doctors deciding who lives and who dies, and other such absurdities. There have been rallies in protest. Indeed, one writer apparently pointed out that, had Stephen hawking been born under a system like the NHS, he would have been killed. Professor H wrote to the journalist in question and pointed out that, as a brit it was the NHS that saved his life.

Yet you can see the hysteria and muddled thinking involved here. The right-wing Americans seem to think Obama is trying to introduce communism into their country, not being able to differentiate between communism and fascism, or communism and a state-cantered model of healthcare free for all. Moreover, without the NHS I and many of my disabled friends – especially those I know from school – wouldn’t be around today. I know I’ve written about this before, but I’m still gobsmacked by how the yanks can think their draconian system can be better and fairer than a system like the NHS.