I’m a ‘Cyborg of Necessity’, Apparently

One of the first things I came across when I started browsing Facebook this morning was this very interesting academic paper by my friend Darryl Sellwood, et al. Darryl is fast becoming a great disability studies academic and writer, who I must admit puts me to shame. The paper broadly argues that the choices and decisions surrounding Alternative and Augmentative Communication (AAC) should be primarily made by AAC users; that is, people who actually use communication aids should be the primary voice in the future of the field, the rules, customs and habits surrounding it. I find that perfectly obvious, and it gets no argument from me.

Reading the paper, though, I came across quite an interesting phrase which stuck in my mind. The text seems to switch from area to area quite a bit, presumably as it goes from sections written by one of it’s five authors to another. One of the authors refers to AAC users as ‘cyborgs of necessity not choice’, a phrase which resonated with me quite a bit, and which I think needs exploring. In my 2014 MA thesis, I touch briefly on how the equipment I use to communicate and move around could be said to evoke Borg implants. The Borg are, of course, the cyborgs of Star Trek. When I was writing my thesis, I think I meant this as quite a cute, throwaway remark; yet I am obviously not the only person to pick up upon the correlation. Does the use of specialist equipment by disabled people really render us cyborgs? What could the sociocultural implications of that be? Could we really seem like the hostile, unfeeling drones bent on assimilating every other lifeform which Star Trek depicts? After all, most mainstream science fiction franchises frame cybernetic organisms, from The Borg to Darth Vader, as some form of aggressive, malevolent enemy. To be honest being called a cyborg, albeit one of necessity, throws up a few quite dark implications and connotations which aren’t all that comfortable, yet which I think need looking a bit deeper into.

A Good Opportunity to end the Anachronism

I heard on the news this morning that Justin Welby has resigned and the so-called Church of England is now looking for a new leader. Well, I have a far better idea: wouldn’t this be a good opportunity to disband the church altogether? I’ve written on here before about how profoundly undemocratic and anachronistic I find it. It is a body which derives it’s authority from a set of outdated, thoroughly refuted myths; it’s members weren’t elected through any kind of public vote; yet the leadership of this church claims the right to intervene in our politics. To make matters worse, it is now clear that this organisation has been covering up child abuse within it’s ranks for decades. The church leadership obviously knew this abuse was happening but did nothing, pretending it was completely oblivious and innocent. In any other context, were this any other organisation, it’s leadership, including Welby, would be standing trial. Were this a supermarket chain, or a high street bank company, whose executive knowingly allowed it’s employees to abuse children over several decades but hushed it up, the scandal would be huge. The company would probably be broken up. Yet because it is a religious organisation it seems to be above the law, including those concerning child abuse. Does that not strike anyone else as utterly fucked up?! If we are indeed a modern, educated democracy, surely this is something we must outgrow.

Stepping Towards a Dangerous Slope

The subject of assisted suicide has cropped up again today. Before now I have always tried to appear on the fence on the issue, unable to quite say whether I was for or against it. Yet, the truth is, the more I think about the notion, the more repugnant I find it. Of course, I’m not speaking from any form of religious or spiritual standpoint; I just feel that life is to be cherished and lived for as long as possible. If we only have one life to live, why would anyone want that finite existence to end sooner than it otherwise might? The world is full of so many awesome things, why would anyone want to die before experiencing as many of them as possible?

More to the point, legalising assistant suicide brings up a few hideous possibilities: roads so dark and dangerous we cannot risk going down them. As many others are pointing out, this bill may start us down a slippery slope which ends with people being coerced or encouraged to end their lives. People with disabilities might start to feel like a burden to others, and suicide might be presented to them as some kind of altruistic option. No matter how far fetched this scenario might seem, no matter how many safeguards are put in place, that is a risk we cannot take.  One step down this path opens the door to a plethora of hideous possibilities,which is why I stand (or sit) with any other disability rights activist worth their salt in opposing it. 

The World’s Greatest Charlatan on The World’s Biggest Stage

They may still be four years away, but I have recently started thinking about the Los Angeles 2028 Olympic Games. Believe it or not, I still have a wierd interest in the Olympics: it seems to me that they are the world’s single biggest sporting and cultural event, bringing the attention of the entire world onto one city for about two months every four years. There is no other cultural event, festival or phenomenon like it, or which holds so much power or impact.

The next games will, of course, be held in Los Angeles. Before now, I saw no problem with that, and was looking forward to them, and particularly the Olympic and Paralympic ceremonies. Last week, however, the United States took an extremely dark turn by re-electing Donald Trump, who will still presumably be in office in 2028. I am now wondering whether trump will try to hijack the games somehow. We all know what an egomaniac he is: might he attempt to make the games, or at least the ceremonies, about himself? Might he try to turn them into a festival of self-justification and aggrandisement? Given the opportunity of having the entire world’s attention drawn onto an American city, I wouldn’t put it past him.

Granted, by 2028 Trump will be 82, and may well not be around any more. But if he does try to commandeer the games and turn LA28 into his own personal ego trip, the results could only be hideous: Imagine Trump’s vile cult of personality writ large to epic proportions; abhorrent far-right vomit delivered on a platter covered with the star-spangled banner. The international Olympic committee will have handed the world’s biggest stage to the world’s greatest charlatan, which is why, frankly, I’m starting to favour reallocating the 2028 Olympics. If trump has his way, by then America will be something approaching a fascist dystopia, and surely anything would be preferable to seeing the Olympic Games, which for so long has been a festival of global unity, sportsmanship and tolerance, abused and distorted by such a fallen country and it’s megalomaniac leader.

Rocking Out in Trafalgar Square

Yesterday was yet another of those days which reminded me how awesome living in London is. To be honest I didn’t have much of a plan: I have a new anti-Trump hat which I thought I’d go try to show off in Parliament Square, but I fancied a bit of a trundle first. I caught the Elisabeth Line to Tottenham Court Road, and had a look round Soho. There wasn’t much going on there, so I headed towards Westminster.

On my way through Trafalgar Square, however, I got rather distracted. The square was swelling with people; people were selling food from vans. I encountered a street preacher who, naturally, I instantly started to tell to shut up. I then got into a debate with him about the nature of reality, which lasted about half an hour. But it was only when that ended that the fun really began.

Heading towards the entrance to Whitehall I started to hear music: cool, rock music of the kind I usually like. Some guys were playing in that end of the square, and people were starting to gather to listen. There were three or four of them: fairly young, and they looked rather funky. The young lady on the drums struck me as especially impressive. The crowd around them was growing, and starting to get into the swing of things.

Needless to say I joined them. I was rather hesitant at first, not wanting to cause any trouble, but pretty soon I was rocking about, flying around in my powerchair like a mad-thing! The band seemed to welcome it, and the funky-looking lead singer encouraged me. They were playing all kinds of cool things, including American Idiot by Greenday. That, of course, lead me to ask if they knew Basketcase, and when they started playing it, the buildings around the square echoing to the lyrics “Do you have the time, to listen to me whine…” I went into full rock mode. The afternoon had suddenly become awesome.

Between songs, the lead singer spoke to the crowd, introducing the band as The Vone. They were busking of course, and asking for donations. I instantly took a liking to this group of young people, and was especially taken by how the lead singer took the time to see what I was typing into my Ipad. Their gig lasted about an hour or so, after which I started talking to them. The lead singer, Marcello, thanked me for my dancing, and I apologised for stealing the show somewhat. As the band packed up their things, I asked if they fancied a beer, and Marcello told me that they were about to go to a nearby pub, inviting me along.

The rest of the evening was spent getting to know my new friends. Marcello turned out to be a fascinating guy: I had assumed he was American given his accent, but he was from brazil. He works as a musician for Cbeebees. He also told me that he lives in Woolwich, so there is a chance we could meet up again. London has this incredible ability to introduce you to fascinating people, so that every morning you never know who you’re going to meet or what you’ll encounter. Yesterday was another of those amazing days which suddenly morphed into something incredible. I have new friends and new memories – what more could I ask for?

I See Trees Of Green

Hold on, hold on. The sky may be grey and winter might be fast setting in; across the Atlantic, we may well have seen the return of fascism to world politics for the first time in eighty years; there may be dark, troubled times ahead. Yet this week we also saw something far more remarkable: something which I find more remarkable than James Bond, The Olympics, Star Trek, Monty Python or anything like that. This week we saw the greatest broadcaster ever return to our screens: Sir David Attenborough.

I was going to blog about this a few days ago, but left it. I find Sir David incredible. To think that he started broadcasting before either of my parents were born in 1952, and is still presenting such fascinating, beautiful nature documentaries is absolutely jaw-dropping. More to the point, he has made us more aware of the natural world than any other person, bringing it’s wonders into our living rooms and guiding us through it’s intricacies as nobody else could. Attenborough’s current series is about Asia, of course, but through him and only him we have grown to understand the entire world; and it is indeed wonderful.

As far as I am concerned, Attenborough stands head and shoulders above any other broadcaster, regardless of genre, nationality or anything else. The body of work behind him is incredible. His voice alone seems to have the ability to engross us, so that when we start watching his programmes the wider, more troubled world fades into the background, and for forty-five minutes or show we are captivated by what we are being shown. This can range from the sight of elephants tromping across the African savannah to earth-worms crawling through English gardens. To think he has been doing this for seven decades is incredible – Attenborough truly is a national treasure.

The world may be troubled right now: War is flaring in Eastern Europe and the Middle East; and the world’s most powerful nation has elected a fascistic charlatan as it’s president. The future, especially over the next few months and years, is unclear and uncertain. Yet I find great solace in the fact that there are still some constants in the world, upon which we can all depend. David Attenborough is one such constant; he seems to be above all the mirk and grime, cutting through it to show us the beauty of nature beneath. He is far, far greater than any of the charlatans, monsters or idiots of the political world, and no doubt will still be cherished long after they have faded into irrelevance.

Are Piedros Fashionable Now?

I swear I saw a woman wearing piedros on the tube yesterday evening. Piedros are a kind of special boot which my school friends and I were forced to wear, made specially for us by a guy who visited the physio department. They were very stiff, and were supposed to hold our feet in the right shape, rising high above the ankle. Yet the woman on the tube was clearly able bodied, and was wearing them along with a very short back dress and a cream-coloured blazer. Sat next to her boyfriend, she was obviously one of those fashionable people who think London exists simply to be seen in: they must have been going to some kind of event or party. She was obviously trying to be trendy, but her shoes were clearly the kind given to disabled kids, or at least resembled them very closely. Could piedros be in fashion? The irony of that would just be too hilarious!

America is Genuinely Scared

It’s a bit long and slightly nauseating, in the way that American comedy can sometimes be, but I think this clip from the Daily Show is worth flagging up. It strikes me as odd: as a piece of public broadcasting, I assume it’s supposed to be a fairly unbiassed form of social and political commentary. Have I Got News For You, for example, is political satire, but it makes fun of both sides of the political aisle fairly evenly. In this clip, however, we see the comedians openly lamenting the election of Donald Trump. It isn’t that I disagree with them, but they do it overtly, in a semi-comedic semi-serious tone, so you get the impression that these guys really think that something truly dire has happened. They openly wonder how their fellow Americans can be so stupid. At one point, one of the comedians refers to Trump as a fascist. While that may be true, the words were said with such earnestness, and with such underlying anxiety and dread, that it was impossible not to get the sense that they thought something was gravely amiss. Their despair was open and genuine.

That overt bias strikes me as strange. Of course, you could just put it down to these comedians coming from a certain section of the population, and wanting to mock a candidate who they didn’t vote for. But I think it may also reflect a deep, deep anxiety now surfacing in America. Beneath the laughing, you get the impression that these guys think that something truly dangerous and unprecedented has happened; that their country has suddenly entered into uncharted, horrifying waters; and that they are genuinely scared.

And So We Wait

And so we wait. There isn’t much else we can do this evening. The world stands atop a precipice as it’s most powerful country chooses between open, liberal democracy and a form of deranged totalitarianism. Should it veer one way, things will probably continue as they have; but should it veer the other, who knows what insanity, what brutality, may be unleashed. All we can do is hope, with every fibre of our beings, that it chooses the right path, keeps heading towards the light, and rejects the path back to a kind of darkness which the world has not seen in eighty years.

And so, once again, this evening we wait.

The Substance

I’ll keep this one short: if you ever fancy watching the most fucked up film of all time, go and watch The Substance. I watched it last night, again at The Barbican, again with John. Frankly, I left the cinema wondering what the hell I had just seen. It is a gratuitous, horrifying film. It’s essentially about vanity and one woman’s desire to retain her youth and celebrity, but it’s played out in a way which is both obscene and ingenious. It is the type of film which is repugnant and awesome at the same time. Mark Kermode sums it up far better here. Check the Substance out….if you have the stomach.

The Buddha of Suburbia

Yesterday turned out to be one of the most culturally rich days I have enjoyed in a long time. Not only did I watch an interesting, if fairly repugnant, film yesterday morning, but in the evening John and I met at The Barbican to watch The Buddha of Suburbia. I must admit I hadn’t heard of the play before J suggested it, but it had been so long since I last went to a theatre – possibly before the pandemic – that I was fairly eager to take him up on the suggestion. It would certainly beat yet another Saturday night at home.

The Barbican is fast growing on me: I don’t know much about how that area of London came about, but it seems to be a vast complex of galleries, theatres and cinemas under my nose which I knew virtually nothing about. It hosts the type of avante-garde art which I often find fascinating, and thanks to the Elisabeth Line, I can get there in minutes.

Thus yesterday evening I met John outside the Barbican Theatres. Truth be told I hadn’t a clue what to expect, but had a feeling I was in for a treat. As we went into the space itself, I got the impression that this was something I had missed; something I hadn’t experienced for a long, long time. I seemed to have forgotten that theatre wasn’t just cinema rendered into 3d, but something completely different and far more visceral.

As luck would have it we got to our places just before the performance began. There was no curtain and the stage was open before us. Soon the action started. I don’t want to spoil anything in case anyone reading this intends to go, but The Buddha of Suburbia is about Indian Immigrants living in South London in the late seventies. I must admit that the plot itself seemed to drag slightly, especially towards the end; but what struck me the most last night was how the story was told. Apart from the intermission, there were no scene changes as such: The action took place in one long go, with the actors using the various spaces on the elaborate, three-dimensional set to represent the various places in the story. I found it utterly intoxicating: watching the cast members seamlessly weave throughout the set, performing their lines, interacting with one another, periodically breaking into dance routines, was intoxicating. I had missed this though I hadn’t realised it, but either way was suddenly very eager to see more.

As I rode the Elisabeth Line back to Woolwich last night, it struck me that I had just experienced what London was best at. It is a city of theatres, of art, of music, of performance. It is a melting pot of a thousand intertwined, fascinating cultures. Places like The Barbican are where London comes to life. The Buddha Of Suburbia brings part of it’s south eastern corner into it’s centre, and in doing so brings the entire sprawling metropolis to life on stage.

Das Idioten and Disability Rights

Just before breakfast this morning, I was talking about film with John: we were checking out some of Mark Kermode’s reviews, and his interview with Lars Von Trier cropped up. Von Trier is a director I first came across at university, but he hadn’t crossed my intellectual path since then. However, his name rung a bell as the guy who directed Das Idioten.

I vaguely remember trying to watch Das Idioten back in my room at university, but being so appalled by it that I gave up about twenty minutes in. This morning, though, I decided to give it another go: uni was over fifteen years ago, and I was kind of curious about it. Luckily, I found it on Amazon, and put it on while enjoying a delicious omelette.

Having just finished the film, it would seem that I have a lot of work to do and a lot to write. Watching as both a cinephile and disability rights activist/blogger, Das Idioten is a highly, highly problematic film, as provocative as it is troubling. It’s essentially about a commune of able-bodied people who see imitating people with learning difficulties as a form of social rebellion or even art. I mean, where do I even begin with that? The characters – and, by extension, the director – seem to think that what they are doing is socially right and justified, rather than a crass, repugnant form of mockery of one of the most oppressed sections of society. The film framed it as commentary or political expression rather than discrimination.

I have known people with conditions like severe autism or PMLD who behaved in the way the characters in the film were trying to imitate. Many live difficult, confused lives barely being able to comprehend the world around them. To see such people being mocked, imitated and caricatured as they were in the film was gut-wrenchingly vile. Yet, when they wanted to, the characters were shown to revert to their normal, able-bodied selves, as if ‘spazzing’ was just something they could step in and out of. They were then shown to use this behaviour to manipulate others into things like paying for meals. The problem is, there seemed to be very little criticism of this repugnant behaviour, but instead the film seemed to present it as somehow political or artistic.

Let’s put it this way: if this film was focussed on any other minority – if these people were shown to be mimicking black or gay people for example, and justifying it as political activism – there would rightly be public outrage. Why, then, should I as a disabled man allow it to go unchallenged? Das Idioten may be about thirty years old, but when viewed in the light of contemporary civil rights activism, there is a hell of a lot which can and should be said about it. The question is, where do I start?

First things first, I need to go for a walk.

Trump Must Not Get A Second Chance

I was enjoying my usual post-breakfast internet browse earlier when I came across this BBC Panorama documentary called Trump: A Second Chance. It apparently aired three days ago, but must have crept under my radar. What it depicts is truly chilling: it is a vivid, ghastly description of the state the USA is currently in politically, where Donald Trump has built up a cult around him and seems intent on taking power by any means. As I wrote here last week about a similar documentary, it is becoming clearer and clearer what a dangerous man Trump is: he is now openly being likened to a fascist, and, as the Panorama program explains, the goals of Trump’s Project 2025 explicitly echo the rhetoric of Nazism.

This is serious. We may joke, we may get hyperbolic, but the world’s most important economy and powerful nation stands at a crossroads. In a few days there is a good possibility that it could elect a dangerous, unstable, convicted criminal who has openly stated his aspiration to become a dictator and his desire to arrest anyone who opposes him. Surely any intelligent person even remotely aware of history will know how critical this situation is. Humanity, as one unified body, cannot allow such an important nation to slide to such depths. I mean that wholeheartedly: I don’t know what we could do, and it is obviously wrong for one country to interfere in the elections of another, but surely we cannot just sit back and watch Trump ride roughshod into the White House and tear American Democracy to shreds.

Everyone needs to watch this program. It can also be viewed here on Youtube.

Cinema Screenings should have Subtitles

I omitted a rather important detail from my entry yesterday which I decided warrants it’s own post. When we went into the screening room, I noticed that the film had subtitles. At first this struck me as pretty strange: the film was in English, so there was no reason for them. I initially thought they would just be a distraction. But then my brain kicked in: The Barbican obviously wanted the film to be accessible to everyone, including Deaf and hard of hearing people. Why shouldn’t the film have subtitles? In fact, when I came to think about it, why shouldn’t film screenings in general have subtitles? After all, it’s pretty unfair on people who need subtitles to watch films to only be able to go to certain, very limited, screenings. If subtitles distract or bother the rest of us, then surely it would be up to us to get used to them; that would be preferable than continuing to exclude Deaf people from cinemas.

The Apprentice – Hilarious, if it wasn’t so Hideous

I went to watch The Apprentice yesterday evening, up at The Barbican with John. We had both been wanting to watch it for weeks, but now that I have, I’m not sure how to sum up my thoughts on it. The film would be absolutely hilarious if it wasn’t so gut-churningly hideous. By that I mean, on one level, Donald Trump is a fundamentally comic character: the guy’s a moron with an over-inflated ego and no idea how the real world works. Yet on another level, Trump is an absolute disgrace to human civilisation who does not give a rat’s ass about the suffering he causes as long as he gets his own way. In the film, we see him raping women and doing all kinds of monsterous, hideous things. Such people drag humanity back into the cess-pit we should have escaped from long ago, and I’m glad Ali Abbasi’s film has been released in time to expose Trump as the monster he really is.

Only it wasn’t Trump – not quite, anyway. It was an actor, Sebastian Stan, playing Trump, and I thought Stan gave Trump an element of depth and sophistication he doesn’t really have. Like any good actor should, Stan explored his character, trying to find what motivated him; he represented Trump as a three-dimensional person, when in reality it is clear that Trump has only one – his ego. Thus I thought the film didn’t quite sit with the reality we are currently seeing unfolding in America, or the one-dimensional arsehole we see shouting bullshit from political rally stages. As far as cinematic monsters go, Trump must rank alongside the most depraved; it’s just a shame that even that monster cannot quite find the depths to which reality has now plummeted.

You can watch Mark Kermode’s much more fulsome review of The Apprentice here.

Tom Tamalin

It is my sad duty to report the death of Tom Tamalin. I didn’t know Tom that well, but he was an old friend of Lyn’s and an outstanding disability rights activist. Over the last thirty years, he went to countless DAN protests and was one of the leading figures in our movement. He will be greatly missed.

The Rise in Liberalism’s Paradox

I once described something I called the Paradox of Liberalism – the tendency to be perfectly ok with other people saying anything they like, unless we disagree with it. Frankly, I think it’s cropping up more and more these days, and is becoming increasingly problematic. As right-wing populism shows itself in increasingly sickening ways, how do we speak out against it without being accused of hypocrisy? Ricky Gervais sums it up rather nicely here.

Avoiding The Drizzle

I love how, sometimes, grey dull Saturday afternoons can suddenly become very interesting indeed. It was drizzling when I headed out earlier: the type of annoying rain which isn’t hard enough to justify staying home, but which nonetheless seems to soak into your skin after a while. In order to avoid it, I had the idea of going over to the excel centre to see if anything interesting was happening there. There probably wasn’t, but it’s often a cool place to spend a couple of hours.

On the bus to Woolwich, though, I noticed two or three young people wearing fairly weird costumes. At first I thought nothing of it as hallowe’en is so soon; but the nearer I got to the excel centre, the more I noticed. I soon began to wonder whether there was some kind of fancy dress event happening somewhere.

I caught the Elizabeth Line the single stop under the river. Getting off at Custom House, everything suddenly became clear: I had stumbled into London Comic Con!

Of course, I’m not that big a fan of the kind of comic book, action hero, genre films which such conventions are about, but I am still very interested in fans and fandom. I instantly decided that the event was well worth checking out. Rather surprisingly, I got in without anyone checking whether I had a ticket or anything, and was instantly met by a mass of people: I have never seen the convention centre that busy. Both sides of the massive building were being used, and there must easily have been tens of thousands of people thronging around. Naturally I was reminded of Destination Star Trek ten years ago, but this was definitely even bigger.

At first I was thrilled: London had done it again, it seemed, and brought me into the kind of cultural event that I usually relish. As time wore on, however, my enthusiasm began to wane. There were stalls and exhibits about all kinds of things, from Manga to Marvel films, but very little really excited me. There was nothing about Star Trek or The Lord Of The Rings. It seemed very commercial and bland: if this was a manifestation of filmic love, it was filmic love in perhaps its shallowest, most superficial form. People were playing computer games and walking around in all kinds of costumes, but I didn’t find anything to sink my analytical teeth into.

In fact, after about an hour or so there it was getting so crowded that I began to get annoyed. No doubt the people around me would claim to be film fans, but most were probably there just for show. I doubted that they relished the characters most were dressed so lavishly as, let alone really understood them. Yet there were so many of them, constantly walking into my way so that I had to move at a snail’s pace, that things were no longer fun.

At that I went on to see if anything was happening up in Stratford. Comic Con had been fairly disappointing, but at least by then the drizzle had stopped.

England’s EVIL North vs South Divide

Just as a follow up to what I wrote two days ago about the growing divisions between London and the rest of the country, I think this video is worth flagging up. It’s an excellent account of England’s North/South divide, going into much of the politics, history and sociology of an imbalance which is becoming more and more blatant. I found it fascinating, although it horrified me to find out how much damage Thatcher’s closure of the coal mines did across the North Of England. I also think it’s another great example of how advanced this kind of online video discourse is becoming.

We Cannot Allow Trump to Become President Again

I think it’s really important that I direct everyone to watch this documentary, which aired last night on BBC2. It details the actions of Donald Trump around the 2020 election, and his refusal to admit he had lost. What really becomes clear from the program is just how unstable Trump is: we may joke and laugh about him, but he is actually quite a dangerous man who will stop at nothing to get his way. He seems to think he is above the law, as do those around him. This documentary makes it clear how worried we should all be about Trump. Given that the USA is still the most powerful nation on Earth, I honestly think the prospect of him becoming president again would be a serious threat to world stability. If that happens, surely the rest of us would need to take action.

Bond Street Awe

This might sound a bit weird, but I must admit that I find Bond Street tube station rather amazing. Not that I’m turning into a public transport nerd or anything, but I find the fact that Londoners can now switch between the Jubilee and Elizabeth Lines so easily pretty incredible. As a feat of engineering, it’s pretty phenomenal when you think about it: Bond Street is quite an old, well used station, but they have managed to link it into a brand new underground line so seamlessly that it feels like it was originally designed that way. The amount of planning and work that must have taken blows my mind: how did they manage to do so much digging without disrupting what was already there?

Mind you, that also brings to mind a much more important point: a hell of a lot of effort and money is spent on London’s infrastructure, but I fear that that makes the chasm between the capital and the rest of the country even wider. Two years ago London got a brand spanking new tube line costing billions, making getting around the city easier than ever before, while it seems that the rest of the country is being left to crumble. As a project, Crossrail as a whole is mind blowing; yet the Northerner in me still remembers the crumbling little towns served by slow, inaccessible busses I grew up in. (Do busses outside of London even have automatic wheelchair ramps yet?) As I roll through stations like Bond Street, so sleek, well designed and reeking of London’s affluence, I can’t help also feeling a deepening sense of unfairness.

Free Victoria Thomas Bowen

If you ask me, Victoria Thomas Bowen has nothing whatsoever to apologise for. From what I read here, she is being tried for assault for throwing a McDonald’s milkshake over Nigel Farage. But given that Farage should be the one on trial, or at least on his knees begging our forgiveness for deliberately misleading the country into voting for something manifestly counter to our best interests, she surely has nothing to answer for. She simply expressed what any rational, sensible person in the UK is thinking by venting our collective anger at a vile charlatan who deserves every bit of abuse and humiliation he gets. We all need to get behind this poor woman, now being persecuted for expressing perfectly natural, justifiable emotions.

Burgers With American Street Preachers

Something rather sweet happened to me yesterday which I think deserves to be noted here. Taking advantage of the dry, sunny weather, I chose to take a nice long trundle up to Stratford. The River Lea and the Olympic Park looked incredible yesterday. Before coming home, though, I chose to check out some of Stratford itself, including it’s high street.

Like most of London, Stratford is thriving, and the high street was bustling late yesterday afternoon: it was full of music and noise. Somewhat predictably, I encountered some street preachers there, which of course I immediately wanted to get to shut the fuck up. I went over to them, and started to try to tell them to be quiet. Unusually, however, I soon realised from their accents that they were Americans.

One guy in the group started to talk to me, trying to justify his bullshit-spewing. Of course our conversation got nowhere: these people think they are purveyors of some hidden knowledge that everyone is ignorant of, and can’t seem to grasp the reality that their beliefs are essentially baseless or that they might be wrong. They kept insisting that, deep down, I knew God existed, but I just refused to admit it to myself. I naturally found this exceptionally arrogant and unhinged, and it made me want to argue with them even more.

Our confrontation went on for about half an hour, predictably getting nowhere. During that time, though, I gradually calmed down, and we began to have a rational conversation. One man, called Adam, told me he once had a friend called Richard, who also had CP, and that I reminded him of his friend. As things began to cool down, I saw that they were nice people, albeit worryingly deluded and highly misguided. The most touching moment, however, came when one of them offered to buy me a burger from a nearby fast food shop: it had been a long afternoon, and by then I was rather hungry. I hesitated at first, not knowing how I would feed it to myself and not wanting to get burger everywhere; but then Adam said he would feed it to me, as he had once fed his friend Richard.

That touched me enormously. I accepted their offer, and spent the next half hour or so talking to them and being fed a rather delicious cheeseburger. There was a lot we didn’t agree on, and I was still confounded by their refusal to listen to reason; but, apart from that, I think I made a few new friends yesterday. Before we parted, I offered to buy the first round in the pub, but the group said they needed to go to a prayer meeting. As I headed to Stratford station, I reflected on what had just happened: their religion still struck me as infuriatingly arrogant, but they were nonetheless good, kind human beings. I found their sheer ignorance frustrating, but there were still glimmers of hope there. I wondered if I would ever see Adam and his American friends again – I told him about my blog of course – but perhaps if I go up to Stratford next Saturday I will find them there. Who knows, maybe they will feed me another cheeseburger.

We All Need To Watch The Apprentice

Staying with the subject of film, the next one I really want to watch is reviewed by Mark Kermode here. The Apprentice is bound to be one of the films of the year, pretty much due to it’s release this close to the US election. The entire world is petrified of what will happen if Trump is re-elected, so a film exposing him, exposing what an utter disgrace to human civilisation he is, is very timely. I certainly intend to go and watch it as soon as I can, and would encourage everyone else to do the same.

A Different Man

Sometimes I watch films which require long, long entries delving into them, but when I come to it I don’t know where to begin. I went to see A Different Man with John yesterday, and I haven’t seen a more interesting film in a long time. I left the cinema thinking that I’d have to write an entire thesis about it to do it justice: it’s such an interesting film, and there’s a lot which I don’t think I understood. There’s a great deal about disability, appearance and self-perception, with the central character seeming to become two different people but also remaining one. I got the impression that any analysis of it could get very Lacanian. It is, however, the type of film which a single viewing cannot do justice, so I better leave this for now, and direct you here to Mark Kermode’s review of it.

Welby’s Opinions are Irrelevant

I really wish Justin Welby and guys like him would keep their opinions to themselves, and stop trying to intrude into UK politics. I just heard that Welby has spoken out against the Assisted Dying Bill, saying that it was the beginning of a ‘slippery slope’ to something far darker. Now, I am more or less on the fence when it comes to assisted suicide: yes, people should have a right to choose what to do with their lives; but I also think such bills open up dangers and risks which need to be guarded against. That isn’t what has got me agitated this morning though. What I find offensive is that Welby thinks he has a right to interfere in UK politics, simply because he calls himself a reverend. I know I’ve written about this before, quite a few times, but it really angers me how some people think their religion awards them as much authority as elected politicians. Welby wasn’t elected by the public, he doesn’t have any relevant qualification which would make his views on the subject especially pertinent; he just thinks his religion gives him the right to tell the rest of us how to live our lives. I find that profoundly arrogant and insulting. Quite frankly, Welby should just be ignored, as we would ignore any other nutcase who claims he has an invisible imaginary friend telling them what to say.

Isn’t CP Obvious?

I heard something on the breakfast news earlier which has had me puzzling over it for most of the afternoon: apparently, increasing numbers of parents are having to wait longer and longer to get their children diagnosed with various medical conditions, including cerebral palsy. “Hundreds of thousands of children with suspected neurodevelopmental conditions in England, including autism and ADHD, face unacceptably long waits to be diagnosed, the Children’s Commissioner has warned.” What strikes me as strange is that, to my knowledge, having CP is fairly clear cut and unambiguous. You usually get it if your brain is starved of oxygen at birth; and it’s pretty obvious whether a child has it or not as it often drastically effects their ability to control their bodies.

The notion that parents would have to fight to have their kids diagnosed with it thus strikes me as pretty strange. Their child could, of course, have a relatively mild case of CP, where they are still able to control their bodies more or less normally. In such cases, however, I would have to ask, is it worth diagnosing the kid at all? What would be the point of essentially labelling them for life, setting them apart from their able-bodied peers, when they can integrate as well and as happily as any other child? Obviously, if a kid is going to need help and support throughout their life, such a diagnosis will be hugely beneficial; but if a condition they may or may not have does not clearly effect them, then what is the point?

But here’s the rub: all this adds to my growing impression that more and more parents actually want their children to have special needs. They want their kids to be diagnosed as having a condition, whether they actually have it or not, in order to access the various social and political advantages which comes with it. After all, as contemporary society becomes more and more competitive, who wouldn’t want their child to have a little extra help, or be seen as special? The problem is, where does that leave guys like me, whose condition didn’t need to be argued over? As I wrote here, with more and more people defining themselves as having some kind of disability, I can’t help feeling that the very notion of being disabled is becoming usurped, devalued and rendered almost meaningless.

How Does Trump Get Away With It?

We all know that Donald Trump is a total fraud, but if you want to watch a pretty good summary of precisely how shallow he is, I think this Steve Shives video is well worth a watch. In it, Shives outlines what a sham Trump truly is: everything he does is an act, intended to convince anyone watching that he’s something he’s demonstrably not. Yet Shives also asks quite an important question: how does Trump get away with it? Surely he should try harder. His shallowness is plain for all to see; rather than being a great business tycoon, Trump is a total failure who has bankrupted himself multiple times. So why are so many people falling for the shitshow? Why have so many people apparently been taken in by this charlatan, to the extent that they seem to revere and almost worship him? That is surely a very perplexing question, especially given that Trump, a convicted con-man who should be in jail, could soon be elected as American president again.

How To Land A Starship

If I hadn’t just seen this reported on the BBC evening news bulletin, I would probably have assumed it was some kind of computer-generated hoax. “Elon Musk’s Starship rocket has completed a world first after part of it was captured on its return to the launch pad. The SpaceX vehicle’s lower half manoeuvred back beside its launch tower where it was caught in a giant pair of mechanical arms, as part of its first test flight.” Say what you will about Musk, what he and the scientists working for him achieved today is truly remarkable. To get a rocket to take off, and then land back on it’s launch pad ready to be reused, is utterly jaw dropping. As someone who sometimes struggles to park his powerchair neatly, my mind boggles at the sheer amount of mechanics which must have been involved. Seriously, if you watch nothing else today, watch this.

A Star-Lit Sky

Given what an awesomely scientific weekend it has been for me, nicking this astonishing photo of the night’s sky yesterday seems very appropriate.

Super bright Venus is to its left, and the bright star Arcturus is to its right.

New Scientist Live

This afternoon turned out to be surprisingly fascinating. I had assumed that it would be just an average, humdrum Saturday afternoon: I set out for my usual trundle at around midday, heading to Charlton and Woolwich, before hopping onto the Elizabeth Line to see what was happening in Canary Wharf.

I didn’t stay around there long as I was starting to get hungry. Before coming home, though, I decided to pop into the excel centre. There are usually one or two events going on there each weekend, but not often much to write about. This afternoon, however, I was in for a treat.

As I passed one of the exhibition halls, I noticed New Scientist Live was taking place. At first I didn’t think I would go in as I didn’t have the cash on me for the quite large entrance fee. But then my cheeky side kicked in: going up to the ticket desk, I asked whether there were any concessions for wheelchair users. To be honest I wasn’t very optimistic, but I thought it was worth a try. To my total astonishment, however, the guy just gave me a ticket for free and let me in.

My parents have subscribed to New Scientist magazine since I was little; it was always on the coffee table when I was growing up. Alongside, say, the National Geographic, it is probably at the forefront of popular scientific journalism. I thus knew roughly what to expect, and it was why I was suddenly so keen to get in. However, it quickly became obvious that I had stumbled into a real treat: there were all kinds of exhibits and stalls, about subjects ranging from climate change to space flight. I was even astonished to find out that the UK has it’s own space agency (who knew?) and I got talking to a very interesting guy from it.

I didn’t stay as long as I might have. It was all fascinating, and if I had got wind of it before I would have made a day of it. Time was drawing on, though, and I was still hungry. Yet the event spans the whole weekend, and I’m told the ticket I was given will still be valid tomorrow, so no prizes for where I’ll be heading after breakfast. I love how London can still produce the most wonderful surprises.

Sky News Is Gloating

I passed through General Gordon square in Woolwich again today, and once again felt rather irked that the big TV there was showing Sky News rather than BBC. What irritated me even more, though, was the fact that Sky was broadcasting a pretty obvious attack on the Beeb. Of course, today saw the BBC launch a review into allegations of sexual assaults in the wake of the Huw Edwards scandal; there’s no denying that that is newsworthy. Yet the way Sky was doing it was so obvious, so gratuitous, that to be honest I found it rather sickening. They seemed to be gloating in the misfortunes of their rival, and trying to diminish their standing. Admittedly, I was in quite a bad mood at the time, so it could just have been my perception, but I couldn’t help wondering how long it’ll be until a Sky News broadcaster gets done for sexual assault.

We Have To Do Something About This

I know I don’t write much about climate change on here. The truth is, I don’t know much about it, but it’s becoming clearer and clearer that the Earth’s climate is changing rapidly due to human activity. I’m sure like most people today, I am frankly alarmed at the news coming from America: at the time of writing, Hurricane Milton has already killed four people. Such storms are obviously becoming more and more severe. To be honest, as a disabled man, I’m relieved that I don’t live in the danger zone of such tempests, because I don’t know how I would possibly survive. Either way, such events must surely serve as a wake-up call: humanity has to act, collectively, to curb the effect we are having on the environment.

A Change Of Order

The staff at Costa coffee shop at North Greenwich eyed one particular customer with increasing curiosity. For the last few months he had been visiting their shop every Wednesday morning. That in itself was odd, as, due to the location of their cafe, they had few regular customers. But what made this man especially noteworthy was the fact that he clearly had a physical disability. Every Wednesday, at around ten, he would barge through the door of the shop in his large electric wheelchair, select the same cheese and ham toastie from the food shelf, before rolling forward to the counter and typing into the ipad he used to communicate that he would also like a large cappuccino. He would then place his Ipad and baseball cap on the nearest available table before going and ‘parking’ his wheelchair by the back wall of the shop.

This happened as regularly as clockwork: the Costa staff had grown used to it, and now knew that the fellow drank his coffee using a special plastic straw and that he kept his money in his bumbag. Where customers with such disabilities had once been rare, in twenty-first century London they were becoming more and more commonplace. Getting out of his wheelchair, he then always walked in his own unsteady, almost frightening way back to the table he had put his things on to wait for his coffee and sandwich.

Only, something had recently changed. When he first started coming into their shop, the man had seemed a pretty jovial sort of fellow, smiling, laughing, and even typing jokes into his Ipad. For the last two or three Wednesdays, though, he had appeared quieter, slower, and much more depressed. It was as if some enormous problem was suddenly bearing down on him, or that the entire world had grown much darker for him. Of course, the cafe staff knew that it wasn’t their business to pry, but they could tell something was wrong.

This morning, however, things seemed to have changed once again. At just after ten they heard the door of their shop swing open. The cafe staff all looked up to see their regular customer surge through the door, his smile returned to his face. It was as if his usual confidence had been restored. As he passed the shelf, he picked out the same toastie he ate every Wednesday; only this morning something odd happened. Rolling up to the counter, instead of starting to type his usual request for a cappuccino, his palsied fingers went in an entirely different pattern.

“Tea,” he typed. “Earl Grey. Hot.”

Job Ad

Job vacancy:

Personal Assistant for physically disabled man in Eltham/Kidbrooke.

Your duties will include:

  • Help with preparing meals.
  • Help with getting dressed.
  • Help with showering and shaving.
  • Help to keep my flat clean.

Two shifts per day – morning and evening.

Seven days a week.

Vacancy can be taken by one person, or shifts can be split between several people.

£13.15 per hour

Email Matthew@matthewgoodsell.co.uk

(Please pass this on to anyone you think may be interested.)

Happy World CP Day 2024

According to quite a few Facebook posts I’ve come across from people with Cerebral Palsy, yesterday was world CP day. That was news to me, quite frankly: I, probably like most people, hadn’t heard anything about it, and if I had stuck to what I gleaned from the mainstream media it would be a complete non-event. That seems a shame to me as we are apparently supposed to use the day to celebrate everyone who has cerebral palsy. Each one of us is different, of course, and the condition effects us all in slightly different ways; but we all have something to contribute in our own unique ways. That may range from the briefest, simplest communication with those around us, to creating art, making films or even writing blog entries. As a group, surely we deserve cheering, if only once a year. Thus, while it might be a tad cheesy to base a day around a disability or medical condition, I’ll happily wish my fellow spastics a happy World CP Day.