I just caught the end of Salmond’s speech to the SNP conference. I’m no economic expert of course, but i seems to me that he is promising to build a land of milk and honey, telling scots what they want to hear, while knowing that he will not be able to deliver. I am concerned that he will woo the scottish people, riding the wave of dissatisfaction with the tories, leading to the fracturing of the country. I do not want that to happen: as I have written on here before, humanity needs to be uniting rather than dividing. For all his pretence of positivity, Salmond’s message is a negative one, a message of us and them, and a hatred of ‘other’. Indeed, salmond is no less short-sighted as that worm farage – they both talk the same fascist language. I do not want my country divided; humanity should be working closer together, not splitting up. Besides, could scotland really stand on its own in the current economic climate? hell even the united states almost went bankrupt this week, so perhaps this is not the best time for this debate. Frankly it is folly, however you look at it.

You might well ask why am I so worked up over Simon stevens. After all, if he annoys me that much, why not just ignore the jackass? Those are valid questions, and indeed he is largely ignored by the wider disability community. Yet the fact remains he has appointed himself a ‘disability consultant’, and thus presumes to speak for all of us, both on his blog and in the Huff. He also claims to be some big shot comedy actor after appearing in Channel four’s rather mediocre disability comedy show ‘I’m Spazticus’ last year. To my mind, to role he played might have bee better filled by someone with more significant cerebral palsy who could actually act, but I digress.

Here, then, we have a disabled man presuming a position of authority and then using it to spout all sorts of bullshit about his fellow disabled people and the disability community. I’m sorry, but that I cannot ignore: I will not let Stevens lie about the wonderful community to which I belong, or the tory-led persecution of disabled people which is becoming more and more apparent. I want everyone to see him for the irrelevant outsider he is, whose views hold absolutely no sway and have no foundation…

Indeed, if you read Steven’s’ articles, it is clear that something odd is going on. For example, at the end of this blog entry, after about five hundred words about how victims of ATOS cruelty do not exist, and how all the instances commonly cited have been misread, we find the following:

[quote=”simon stevens”]I call all this (atos ‘bashing”) a fad because it is very easy to attack this government. I strongly believe that the very minute we have a Labour government, the media will change their agenda instantly, focusing on why are these supposedly disabled people not working, as a new fashion, and I believe the current media spokespeople of disabled people, like Sue Marsh, will find themselves being yesterday’s news as the media seeks a fresh angle.[/quote]

Is it just me, or does that make no sense? It is pure nonsequeteur: why would the media make such a switch? Why would the coming of a labour government make he media change tack so abruptly? We attack atos and the government because they are literally killing us, something which stevens refuses to see in oder to set himself apart from those he calls ‘fake disabled people’. I can cite many instances in Stevens writing: I often get the impression that he is trying to write about things he does not understand yet thinks himself an authority on, like a child trying to use big words in order to sound like an adult, yet not having a clue what they mean. His words, when placed under even the slightest analysis, betray a man trying to punch far above his weight, who, despite calling himself a consultant and craving attention as the crip-icon he thinks he is, clearly does not understand the matters at hand. His writing should be seen in the light of that, and not given quite the weight one might accord to other pieces.

I am now, officially, a twit. Yesterday I gave in to temptation and joined twitter, after trying to put it off and avoid it. I see myself as a writer; while I admit my blog entries are usually quite short, I do not see the point of trying to condense ones thoughts into 140 characters. What can one do with such a limit? You can’t debate things as one might in an essay or blog entry. And yet it seems that is the way things are going: the novel and book are giving way to the short newspaper article or tweet, just as the 90 minute feature film is giving way to the Youtube clip. Of course, there are still exceptions to this (the ten hour epic Lord of the Rings being a good example) but short abrupt work seems to be the trend currently.

Thus I gave in and decided to see what the fuss was about. Besides, from what I hear a lot of stuff happens on twitter which as a writer I need to be privy to; all the big movers and shakers, both within the disability sphere and outside of it, have twitter accounts. My blog will still be my main output, of course, but I’m now looking forward to exploring this new shorter form of blogging. In a way it can be seen as a new evolution of prose, and that interests me. I can now be ‘followed’ @matthewgoodsel2

It has reached the point where I almost give myself a heart attack every wednesday. Prime ministers questions has almost become unwatchable for me: I am sick of the sight of CaMoron standing at the dispatch box, lying through is teeth,making out that everyone benefits if you cut taxes, spouting bullshit about Labour causing a mess they were fixing and generally being the unelected tory scumbag he is. Given these assholes even lie about what they say to the police, what the fuck are we doing letting them stay in government?

Interestingly, there was a question this week from Dennis Skinner about ATOS. He pointed out that yet one more life has been lost to this cruel system. The fact that camoron refused to intervene tells you all you need to know about the piece of shit: lower taxes mean less money for those on benefits, meaning systems like those run by atos need to be put in place, meaning people suffer and die. Hell, he might as well cut out the middle man and start building concentration camps. The fact that jackasses like simon stevens are still denying publicly that such tragedies are real fills me with disgust beyond any human language; he, like camoron, effectively has blood on his hands. Something must be done to get the tories out of power so someone actually capable of thought can take control of the economy, so that no more people have to die.

Let me say first an foremost that I am not in the business of trying to censor anyone, but, as I have touched upon once or twice of late, I am becoming very worried indeed about the writings of Simon Stevens. I discovered yesterday that he writes for the Huffington post – possibly the most prestigious online publication around. This gives Stevens’ ill-informed ramblings a weight they do not warrant, and that worries me.

I’m now convinced that a concerted effort needs to be made to counter simon stevens and his buffoonish articles in the huffington post. He may be a fool, but nevertheless he is a threat: for example, he has written of how the disabled people’s movement has been overrun by those with lesser impairments, who take benefit money which would otherwise go to him. How selfish, and how arrogant: he seems to have appointed himself arbiter of what others can and cannot do, how profound impairments are, and what defines disability. He claims his is a positive message aimed to encourage people to get off benefit and be more independent, but the problem is it plays straight into tory hands. As I recently wrote here the danger lies in the fact that others will think he speaks with some authority – he even has the audacity to call himself a disability consultant – when in fact he is an outsider whose views are born of mere selfishness. The government can use his utterances to support their victimisation of disabled people, through which they are forcing very vulnerable people back into work.

It is vital we defend each other as one community. I have cerebral palsy, which affects my dexterity, mobility and speech quite profoundly; but I would not for one second claim a person with, say, asbergers or OCD is any less disabled than I am, nor would it stop me defending their right to support. But that is precisely what Stevens is saying: ”The old movement has been all but dead for a number of years as its generation of activists have been institutionalised into the system they supposedly once fought against. But in 2010, the welfare reforms created a new ‘sick and disabled’ movement where we were now called to stand together to fight against ‘cuts’ that are yet to materialise in any meaningful way, and help sick people to, well, have the right not to work.” In other words, to stevens, the disability movement of old – the band of heroes which freed us in the seventies and eighties – has been overrun by people who are merely ‘sick’ and lazy. Needless to say, this analysis bears no resemblance to reality: quite frankly, I find it insulting, as a man who went to a special school and whose partner grew up in a scope home, to hear such words from on of the first beneficiaries of inclusive education. Moreover, what right does stevens have to cast doubt on other people’s conditions? How does he know they aren’t as severe as his? Such words divide us, and doom us.

The goal of the disabled people’s movement is as it always has been: equality. We may no longer be locked away in scope homes, but now we face other forms of persecution. And these forms of persecution now affect greater numbers of people, so that they too have every right to call themselves disabled ad fight alongside us. To argue we should stop fighting, and that the movement has been overrun by lazy malcontents, gives carte blanche to those who would oppress us to ignore our entire movement, to continue with the cuts and the back to work schemes. That’s why it is vital we try to have Stevens’ articles taken offline: they are damaging, devicive and hurtful, and, if seen by the wrong person, potentially very dangerous indeed.

Following on from the idiotics I wrote of here, I just wrote the following complaint concerning an article I came across this morning

Sir

I write to complain in the strongest terms about an article by simon stevens on your site, dated 6 august. I find it utterly preposterous and offensive, as do, I assure you, many in the disability community. In it, Stevens blithely attempts to justify his work with ATOS, an organisation which, no doubt I need hardly remind you, ha caused an incredible amount of suffering to many people. In writing this article, Stevens undermines the united front true disability activists need to show against ATOS and the government cuts. Thus, while I do not oppose freedom of speech, I must implore you to take it down from your website: Stevens speaks only for himself; he clearly does not fully understand the issues at hand or the implications of his words. In short, having his ill-advised article on your website does us all more harm than good.

Yours

Matt Goodsell.

Chilling in the evening, after a chippy tea

Listening to music, just you and me

The songs I suggest might be rather poor

But I know you have some brilliant tunes in your store

So you select the music, love, and I’ll just listen It’s enough to see your face light up, your eyes glisten,

And to hear you sing along to each new track.

So after this has been posted I’ll hurry back To sing with you to whatever you care to play

Anything you select always brightens my day.

I’m currently feeling quite positive about things: Lyn and I are both well, I have a couple of films to work on, and things seem quite cheerful in general. I think one contributing factor to this is that my absences seem to be behaving themselves – I’ve hardly had any in about two months. You know, I was reflecting recently on the benefit of knowing what they are: for much of my life I thought I was imagining these spells somehow. My parents say they told me, but I couldn’t remember; it wasn’t until the events of a couple of years ago, after Lyn noticed them and asked to check them out, that it was firmly established in my brain that they were a form of epilepsy. Mum and dad had always called them absences, so, looking back, if I had googled the term I’d have saved myself a lot of fretting. Anyway, once I knew what they are, my relationship with them changed: I wasn’t being silly I wasn’t imagining them, and I didn’t have to hide them.In a way it feels good to know I can ask people about them, and that others have them too. Hell, there were even facebook groups I could join. Once I looked it up, moreover, I recognised many of the things I felt in the descriptions; I was at last able to put a name to the odd, usually upsetting sensation of not being able to remember the layout of the area around me: Jamais vu. I found it reassuring, and that reassurance helped with the fear, as did knowing that I couldn’t help them. They still make me feel a bit down, of course, but that, at least I now know, is part of their inherent neurological effect, and cannot be helped.

It’s strange but in a way knowing I have a form of epilepsy makes me happy. Instead of fretting that I somehow imagine my absences, I now have something to google and explore. And I think that principle applies elsewhere too: if you can name something, if you know something is real, definite and can be explored, the fear of it goes away. That’s why I now think that I won’t hide any future problems or dilemmas I might have, but engage with them, and ask others about them, whatever the issue. I think I’ll advise others to do the same – the folly lies in allowing one’s ignorance to continue. I think that is a valuable, positive lesson.

Busy days, no time to blog shopping, script-writing, fixing the bog.

Watching mitch and rudi make new shelves for lyn

Sawing wood in the garden; we better stay in.

Soon I promise to write something longer than ten lines

I just seem to have entered some busy, exciting times

Sir,

I just came across your 15 july rant against the national health service. How it’s author, cal Thomas, has the cheek to call himself a journalist is staggering. I’m a brit and owe my life to the nhs – we are rightly proud of a healthcare system free at the point of use, accessible regardless of income. It is infinitely more civilised than the american system /mr. Thomas has used a few well-publicised yet isolated incidents to rubish the system; in doing so he insults the nhs, britain and journalism. Never have I come across a more unsubstantiated, biased and il-informed piece of writing. I demand an apology and retraction

I may sometimes seem awed by this city and what happened in it last year, but London can also be a very dark place too. I just came home from a walk: I needed to get a bit of cash out, and I’m currently trying to come up with some song lyrics, so I decided to go up to stratford for some inspiration. I had not been there in a while, and the place was very busy, so it took me a while to find my bank – so long, in fact, that there was no time to do any shopping afterwards. As I was going back to the station, though, I saw something which troubles me: at the side of the pavement there was a man in a wheel chair, begging, a red cap in his lap. It is a depressing but not uncommon sight, and I had noticed him before on my way to the bank. However, this time he was being told off by an able-bodied man who, when another passer-by asked, said he was the man’s carer. He was shouting, accusing the man in the chair of falling asleep and not raising enough money. Clearly something very, very wrong was going on: taken at face value, no carer or PA would ever act like that. I assume the guy in the chair was being used to raise money for drugs; he probably had mental as well as physical disabilities, and thus was being abused. I wanted to say something, to tell him to stop, but I would have either been ignored or punched. I tried to find a policeman or security officer, but there were none. I came home hating myself for not doing anything, for being a coward and letting some poor old man’s hell continue.

Part of me is ashamed to admit that I’m still fairly obsessed with the olympics, and in particular olympic ceremonies. A voice at the back of my mind keeps saying I’m being sad, and that I should start to focus on something else. Yet, when you think about it, I’m not straying too far from my background in film, tv and cultural studies: it occurs to me that such ceremonies are essentially works of art, but on a scale unlike any other. They can be read as presentations by a city/country to the world, and thus are highly revealing, highly political works. I also have a hunch that the olympics in general, from the selection of the city onward, can tell us a lot abut international politics. The ceremonies are therefore rather interesting to try to decode, compare and contrast. I have written on here before of my fascination with the London 2012 ceremonies: if we can indeed read them as we would a film or theatrical performance, surely the next logical step if I’m going to take this fascination seriously is to read them in relation to what preceded it, as well as other events of their kind (commonwealth games, world cups, song contests and so on). Ironically, the ceremonies of London 2012 were the first I had ever watched in full, but fortunately there seems to be a plethora on Youtube – I was just watching the opening of the Vancouver 2010 winter games. There also seems to be quite a big literature on the subject too. That, and the fact that each ceremony is so damn long, means I have plenty to keep me occupied.

I don’t have much to write about tonight, but I would just like to draw this appalling story to your attention. It is the frankly disconcerting tale of how a thousand pound watch was stolen from a severely disabled man in Gloucestershire – unable to call for help, the thieves walked in and just took it when his PA was distracted. The troubling thing is, they must have observed the guy and singled him out as ‘easy pickings’. If we can take this as a sign of how desperate and ruthless people have become, we live in troubling times indeed.

I daresay most people reading this will know me personally. For those of you who don’t, I have moderate to severe cerebral palsy: I can walk, after a fashion, and talk, after a fashion. Although I have had paid employment before such as the time I worked asa student ambassador for university, as has my fiancee Lyn, it is pretty obvious that it would be difficult if not impossible for either of us to do a regular job. Our claim to disability living allowance is, more or less, clear cut. In that respect we are lucky: I have long known that not all disabilities are as obvious as mine, and not all barriers to work can be classified as a disability.

I am appalled at the bile currently coming from the government and rightwing media labelling all those out of work as feckless or lazy. There are many complex reasons why someone would not have a job, and I can’t pretend I understand them all. They range from education to family circumstances, many of which can be as impairing as a physical disability. Thus to judge someone because they do not have a job, to dismiss them as lazy without even trying to understand their full circumstances and background, is utter folly. Marxist sociology, for instance, posits that one may be impaired due to socioeconomic class: the education system is innately geared to favour those middle class students who use certain kinds of language, and who get support with their work at home. Overtly or covertly, barriers are put up in order to perpetuate the class system, to make sure only certain types of student succeed.

I think it’s even more complex than that, though. Right wingers speak of people taking personal responsibility for their destiny, blinding theirselves to the fact that we all exist in a nexus of interrelated events, each having a bearing on the other. On the most reductive level, personal responsibility is a myth: all we can really do is react to external forces, many of which are oppressive. Of course, I do not completely negate free will or choice, yet nevertheless the nexus exists, and we are all in it. Moreover, it is impossible to map out all it’s ramifications, so to say unemployed people are just lazy may, in some instances, be akin to dismissing a person with a severe disability as just lazy. Again, there may be a thousand unseen factors why someone may not have a job.

This is why what papers like the daily mail are doing is so terrible: it is stigmatising huge swathes of people, encouraging crude stereotyping and discouraging efforts to understand why people behave as they do. Be it because of culture, education, lack of hope or vision, to dismiss an unemployed person as just lazy is, in itself, lazy thinking. There are reasons why people are as they are, but for some it feels much better to just absolve themselves of all responsibility and brand the unemployed idle.

A few lines of lyrics, if I may,

this being ‘national poetry day,’ A verse or two would seem timely on a day celebrating words used finely.

There’s nothing like poetry for play with words

To evoke the sunrise, the songs of birds

And everything that is beautiful about life on earth.

Poems are like a babe’s first laugh after it’s birth.

So here’s to Shakespeare, to Keats, To poor Wilfred Owen

Enriching the world with nothing but a poem.

To anyone who still believes the government is acting justly, to anyone who still believes the tories care about who they hurt, to anyone who still believes the cuts are not killing people, I beg you to go here.

From what I heard today, Ed Miliband’s dad was an academic critical of institutions like the monarchy and army. I too am critical of such institutions, or at least I am aware of the criticisms of them. That does not mean that I hate my country. To be critical of something surely implies one seeks to improve it: criticism is, or can be, a form of love, like a parent criticises a child. Thus I am beside myself with fury at the daily mail’s unthinking attack on Ralph miliband. he may have been a leftwing academic, but that does not mean he is a traitor, and it does not give any mindless tabloid hack any right to brand him as such. The mail’s article, despite it’s laughable classical allusions, is nothing more than the puerile ramblings of a gutter journalist, an ad hominen attack on a dead academic whose son happens to be the leader of the opposition. To seek to discredit the son by besmirching the father is frankly beyond the pale; It is an insult to journalism, and for the editor of the Mail to appear on Newsnight this evening to defend such an abomination fills me with disgust for the rag he calls a newspaper.

An article appeared today in the huffington post which I have major problems with, yet which I’m having difficulty finding a way of arguing against, at least in a concise way. It was an attack on the disability community from within, as it were. I’m not going to give it the dignity of quoting it or linking to it, but it basically accused us all of being left wing extremists intolerant of opposition or dissent. Truth be told, it is a poorly thought through, ineloquent and illogical piece of writing, but the danger of it lies in the fact that, given it was placed in such a well known online journal, people will think it’s author speaks with authority.

Rather disgustingly and nonsensically, it claims that the disabled people’s movement has been taken over be socialists who merely claim to be disabled, and that ‘true’ disabled people are losing their voice. One presumes he means those with unseen or not-so-obvious disabilities. How dare he make such an accusation? How dare he be so arrogant? Moreover, I find how he accuses those in the disability activism world – a world I try to be a part of – of being socialists because we believe the state should help in our support, just as nonsensical. To him it is somehow because of such activists, whom he se as full of blind hatred for ATOS, that he is denied personhood as they, for some reason, reduce him down to a label when in fact the opposite is the case. The whole thing sounds as if it is written by someone who does not understand as much as he thinks he does; who craves attention; a Thatcherite who has done okay for himself but would deny others the support they need; who thinks he is more important than he actually is, or less important than he should be; in short a spoiled attention seeker trying to punch far above his weight. Such people are fit only to be ignored – I just hope others realise that.

I read today that Constable Mike Barton of Durham Police proposed that Class A drugs should be decriminalised and drug addicts treated and cared for not criminalised. I just want to say that I agree with him: while I am, let us say, slightly more experienced since I last blogged on the subject, as I wrote here, we need to legalise drugs, bring them away from the underground in order to control and regulate their use. If they remain underground they remain dangerous. I’m glad somebody has finally pointed this out; at least it gave me an opportunity to refer back to one of my old blog entries, too.

It has been a great couple of days. Yesterday we visited lyn’s old school; she wanted to investigate the possibility of tutoring there. It was a sprawling, fascinating place: it reminded me of my old university campus, with added stables – more of a small yet thriving comunity than a special school. Lyn would probably be teaching young adults there; a prospect we both find very exciting.

Today it was my turn to be proactive. I am writing this on the bus back from a filmpro event in hoxton where I made some very good contacts in the disability film making sphere. I went not knowing what to expect, having simply seen the event advertised on Facebook, but I am now travelling home feeling like I have achieved something.

Sorry this is yet another diary-like entry, and one short on detail at that, but life is sometimes so busy, so much fun, that you barely have time to record it.

Following on from my entry a few days ago about AAC, I’d like to direct you here today, to a brilliant little article by Sally-ann Garrett in the huffington Post. Garrett gives readers a glimpse of what a minefield the whole area can be in terms of securing funding, getting assessed and so on, as well as emphasising how vital it is to get those who need it the right equipment. While the huffington post isn’t mainstream in the strictest sense, it is very encouraging to see that more and more is being written about the subject.

I suspect most people would agree that spitting in public is a disgusting habit. Frankly I find it revolting, and I get slightly angry when people do it, as if it were a sign of manliness. I’m also utterly unconvinced that it is a necessity for people engaged in sport. As reported here, in what is thought to be the first UK case of its type to be successfully taken to court, two men have been fined £160 each for spitting in the street. The judge effectively classed spitting as a form of littering. I suppose that is to be welcomed, but one question occurs to me: what about we guys who dribble? Of course I’m sure most would say the difference is obvious, but when you think about it where do you draw the line. Many, albeit narrow-minded people, don’t understand how hard it is for us guys with cerebral palsy to control our drool, and object to it as they would those who spit. Might we therefore be open to persecution or prosecution because of this ruling? I admit the chances of such an absurdity happening are infinitesimally small, but I just have to raise a pessimistic eyebrow at he notion that it could now be possible.

I still feel rather shaken up about this, and it has affected me more than I thought it would. Lyn and I have a bit of a mouse problem in our kitchen, so we laid down traps. Mitchel got us a variety of traps, one of which was a sticky bit of card: when the rodent ran over it, he would get stuck. Yesterday morning, then, Marta inspected the trap, and found a small white mouse suck to it, alive and struggling to free itself. She called me into the kitchen, looking scared – she said she couldn’t handle it. We didn’t know what to do.

Even now I’m shaking as I type. I had no choice but to carry out what I now think was the most horrible, base and abhorrent thing I have ever had to do: taking the hammer Marta had handed to me, I bashed the poor little fuckers brains out and took the whole sticky mess to the outside bin. I felt utterly sick -for the first time I had directly ended a mammals life in a truly violent way. I know I had little choice, but I instantly felt deeply deeply ashamed, horrified to realise that it was so easy to end a life.

Swipe, Sky News’ cheap, tacky replica of Click on the beeb, has a short article about Lyn and her new instrument this week. To be fair, it’s quite good, and raises a few issues. for example, there is an ongoing debate in the disabled community over whether it is better to use standard, off-the-shelf equipment such as the ipad, or to ask for purpose built machines better tailored to their needs, like the lightwriter or dinovox. To be honest I haven’t decided where I stand on this debate; there is surely room for both solutions. What is clear though is the specialist equipment is usually far more expensive than the general-use stuff despite the latter often but not always being just as useful, but as the sky report shows, it need not be. Things like the Lynstrument cost very little: It doesn’t have to be fancy, it just needs to get the job done. Anyway, swipe can be seen here.

My apologies, but this Reuters article is just too ironic for me not to flag up. ”A Tunisian pilot who paused to pray instead of taking emergency measures before crash-landing his plane, killing 16 people, has been sentenced to 10 years in jail by an Italian court along with his co-pilot.” It is, of course, tragic, but could there ever be a more dramatic, brutal demonstration of the folly of religion?

It has been an awesome, awesome day, for a variety of reasons: I decided to zoom up to westminster, and was on the scene when all sorts of amusing shit hit the fan at the UKIP conference, although I didn’t see Godfrey bloom make his comments in person. It was quite a fascinating afternoon, actually,, just hanging about the conference centre talking to the candidates, although my opinion of them has not changed: I still think they’re xenophobic idiots, albeit marginally nicer xenophobic idiots.

Far more importantly, though, I have the pleasure of directing you here, to an article by Lyn in the famous huffington post about her instrument. Great stuff indeed if slightly basic. It really is exciting to see her grow and grow as a musician, and the Lynstrument is an exciting new branch of that growth.

I feel very positive indeed about yesterday. It turned out to be quite a hectic day: our original plans for the day were put on hold for reasons we need not go into, so I decided to zoom over to luke’s for the afternoon. The last few day’s I have visited, social activity got in the way of work (read: we just went to the pub), but yesterday we made some real progress on our film. Perhaps for the first time, the project felt like it was becoming a definite reality. Without wanting to go into too much detail, I had a flash of inspiration and made a suggestion which Sally called ‘genius’; it made the entire thing much more feasible. I now feel much, much happier, and truly eager to get down to work. I’m such a lucky git to have met those guys.

It has been a long, busy, great day. I can’t write much tonight, other than to welcome to the world James Nicholas Flackett, born today at 10:46 am, weighing 5 pounds 7, to my great university friend Chris and his wife Melissa. Mother and baby are both doing fine, and I couldn’t be more happy for them.

Your nose touches the glass screen; and then…

A type of magic – the very stuff of life, of dreams –

Flashes from the pad. Thus it seems

From your nose comes so much wonder, so much joy

And so much beauty.

—

Your nose touches the screen, and music comes

Wonderful song, unusual and electronic:

with a head-nod you summon into being sound and rhythm like no other. Like the choir of heaven creating the world You create sound – and life!

—

Your nose touches the screen, and pictures form vivid, unbelievable real faces emerge, from hours’ toil.

Stunning an viewer yet done for fun. Relaxation on a sunday night for you,

But to me, utterly remarkable.

—

Your nose touches the screen, and my love redoubles!

While I’m not sure about this story, as I suspect we aren’t being given the full picture, I think it is worth linking to anyway. It concerns a severely disabled young man who, even though he can neither walk, talk or care for himself, has had to undergo a work assessment and is now at risk of loosing his benefits. The problem, as far as I can gather, is a lack of coordination between authorities as he goes from child to adult services. Yet this is nevertheless more evidence of the pressure we disabled people now face; the government is trying to squeeze us however it can, so much so that work capability assessment firms don’t give a fuck about putting this man and his mum through this ridiculous process. It is quite wrong and very worrying.

I think I really need o direct you to this highly articulate, very well-informed young man. In this video he trounces UKIP, in an entertaining thorough way, but if you have time take a look at his other submissions – he seems to have a lot to say, and thusfar I agree with most of it.

Sometimes odd little pieces of ephemera catch my eye which demand to be noted – just tiny little details which catch my eye that I suddenly feel I need to record here. One such incident occurred today – well, more of a punctum in real time than an incident. Lyn and I were having lunch in the local cafe when a woman came in wearing a pink London 2012 hoodie. That in itself is nothing uncommon, but the I noticed it was, like her jeans, smeared with white paint; she had obviously been decorating in it. Something in that image pricked me. It was like a statement saying the olympics of last hear have become mundane, the praphinalia from it has now joined the rest of the clutter of the city, Londoners disavowing it of its original meaning and value and using it as they would anything else. Thus clothes from London 2012 have now become just work clothes, proving once again that there is no room for sentimentality in the maelstrom.

I received email conformation earlier today that my masters thesis has been printed, bound and submitted to the appropriate people, something which both excites me and fills me with dread. I have been working on it for six years: on the one hand, given that it was only supposed to take year I feel quite ashamed of that fact; after all, London planned and put on the olympics in less time. And yet, this is something I’ve worked very hard on for over half a decade, pouring my heart and soul into the longest piece of work I’ve ever created, apart from this blog. I am bloody proud of it. Yet now, I suppose, all I can do is wait, and hope the examiners pass it – the fear that they might not is pretty indescribable. I would like to thank Esther for her help on the early stages, and my parents for helping me get the document ready for submission.

It is the time of year when I wish my good old friend Charlotte a happy birthday. This time last year, of course, we all had the jubilation and merriment of the paralympic closing ceremony, but today, the rain starting to pour, I can’t help feeling a little low. Of course, Lyn and I have many cool things to look forward to; it is just the fact that it has been months since I saw my best friend from university. C has an infectious energy about her that just makes one want to party. From what I read, though, she is doing well: Charlotte’s singing group, The Harmonettes, looks like it’s getting ver popular, and sounds wonderful. Wherever charlie is tonight then, I hope she is having fun, enjoying her birthday and keeping out of the rain. See you soon, mate!

In terms of coolness rating, today was sub-zero. A few months ago, a Spanish film company asked lyn to help them create the score for their documentary, The Unstoppables. This she did, and they were very happy with her work. So much so, indeed, that they then decided to make a second, stand alone film about Lyn and her music making. Shooting began today, and although it’s only going to be a short film my eyes really have been opened to how intense the film-making process is. The crew of three were here for about seven or eight hours and worked constantly, setting up shots and shooting, and even so they need to come back and do more.They just filmed around the house, but even so I think we are both knackered. Nevertheless, I found it absolutely fascinating and can’t wait to do more. They were awesome guys to work with – professional, expert but fun. I’ll post a link to the complete film as soon as I can.

My love of film as an art form grows even deeper.

Sitting in the park yesterday, drinking too much beer,

Watching the Mighty 8 cricketers, giving them a cheer.

A great day for them, and quite a comfortable win

How we talked and chatted, many quaffing gin. Watching the wickets fall, there we all sat; for my support this year they gave me a hat!

A truly great afternoon, then, out in the park

And then a barbie at the club, as it grew dark.

‘Though I don’t play, it’s like I’m on the team.

Yes, they are now my friends these men, these cricketers of esteem.

I think I better just mention the rather cool inclusion of voca-using comedian Lee Ridley on this week’s edition of Click, the technology show on bbc news. They were doing a segment about the use of technology in comedy, so Ridley who uses a communication aid throughout his performance, was relevant. It is only a brief mention, but it occurs to me that we voca users are slowly becoming more and more visible in the media. I’m Spazticus on channel four is a great move forward in that area, as is, I think, the paraorcestra. At last it is not a rarity to see a crip on telly, and that must surely be a great thing. I daresay that the producers of Click might be interested in Lyn and her use of the ipad to create and perform music – reckon we should contact them?

How can I sum up the events of yesterday? The truth is, I don’t feel I’m qualified to give an overview of the politics behind it all, yet it is clear to me that we disabled people are being hit hard by the government cuts. Clear enough, indeed, that yesterday I felt compelled to join my comrades on a protest up in westminster. It turned out to be an incredible day: as usual I went not knowing what to expect; I met a group of my comrades up in whitehall, opposite Downing street, already getting warmed up. They were a diverse bunch, the disability community now accommodating a gloriously vast array of people. Many people, not just those with the usual physical disabilities, now define themselves as belonging to our community, and a great many of them are being hurt by the tory cuts.

A short while later, after a few protest songs had been sang, the protest moved from whitehall to the DWP office in order to convey our message to Ian DuncanSmith. There we met up with other sections of our protest party who had been campaigning in other areas, such as the department of education. That is when it became clear to me that this was no small affair – there must have been two hundred of us. It was then, too, that I heard of the plan to actually enter the palace of Westminster and deliver our concerns directly. I had thought I would be home by seven, but this was going to be a long day.

I never thought I would actually be allowed into westminster hall, yet yesterday afternoon, having spent what felt an age going through security, I found myself sat in the beautiful millenium-old building. It is a fascinating place, labyrinthine with an ancient feeling. Portraits of prime ministers adorn the walls: I couldn’t help thinking his was where great people like churchill once walked. Unfortunately the building only has two small lifts, so getting us all to our allocated room took a while, and even then we couldn’t all get in. Thus I missed most of what was said, and indeed who said it. Nevertheless I felt it necessary to be there, sat with my comrades in the halls of power.

At this point I feel I should launch into a rant, outlining how angry I feel at the injustice this government is causing. And I did feel angry sat there yesterday in the green-carpeted corridor. Yet it was not a day for ranting, just being there was sufficient, showing our opposition to the injustices currently being meated out. The bus ride home was long and slow, and I was feeling guilty about not being able to skype my parents at the arranged time, but it had been a thrilling, amazing day – one of the greatest. I went to bed last night feeling that maybe, just maybe, I ad helped make a difference.

It has been a long, amazing day. I feel like I should try to write about it – I went into a place I never thought I would wheel into (think big, millenium-old buildings in central London) . Yet sometimes it is best to sleep rather than write, so I’ll keep you in suspense: sorry, but this one will have to wait ’till the morning.

Believe it or not I still haven’t seen ‘Star Trek Into Darkness’. I must be the only self-confessed trekkie not to have done so. The truth is, it did not appeal to me; I did not feel as compelled to go see it in the cinema as I would if it were a trek film of the old sort. You see this new type of star trek – the sort begun with the 2009 reboot – does not feel like trek should; it feels completely different from the franchise I grew up with. However, I cannot, I suppose, close my mind to it; the 007 franchise constantly reinvents itself – that is, in fact – one of it’s defining features. That is why I bought ‘Into Darkness’ on dvd today. I’ll probably post a short review on here soon, but part of me still fears that the science fiction franchise I grew up loving is now gone forever, replaced by something with the same name but a totally different aesthetic and soul.