I owe my life to a doctor; they are the profession I respect the most. I take pride in the fact I live in a society where healthcare is free at the point of use, and where the healthcare system is staffed by the best professionals in the world. The doctors of the NHS work tirelessly, saving lives day in, day out. They deserve all our respect, so to see them treated so badly yesterday by Jeremy hunt was more than I could stomach. How that petty little embarrassment to humanity cold just come in and impose his will on doctors, disregarding there concerns with an air of superiority only a Tory could possess, enrages me. These are people many of us owe our lives to: how can this sniveling piece of shit whose whore of a mother should be punished for giving birth to such an arrogant little fuck treat them so badly? How can Hunt still be in office this morning? If he had any honour, he would have offered his resignation last night. But of course, no tory has honour. All they care about is what [i]they[/i] want, imposing their will on us. They do not care who suffers as long as their profit-driven plan comes first; and indeed, like many I suspect this is all part of their plan to undermine the NHS until it collapses and they can install a private system, and only their rich friends will get the best care. It’s sickening to see this happen before my eyes.
Care package cuts
In an effort to combat the type of obscene injustice I blogged about yesterday, Lyn and I created a new Facebook group called Care Package Cuts. We want it to be a mutual support group for people with disabilities now facing cuts to their personal care. There are, of course, quite a few such groups out there now, but this one is run by and for severely disabled people, most of whom know firsthand the fear of having ones care cut. The group can be accessed here.
This barbarity cannot continue
Today started really rather well. I got an email from a lady I work with at school this morning, asking whether I’d be interested in the newly-established Charlton and Woolwich film Festival. That proposal was too delicious to turn down – apart from a part of Antonioni’s ‘Blow Up’ having been filmed in a nearby park, I wasn’t aware of much of a film culture around here – so I replied that of course I’d love to be involved. We’re going to meet next week during half term to discuss a plan of action, and the festival’s website mentions a meeting in a local pub on the twenty-fourth I plan to go to. The opportunity to meet local cinephiles made me really excited.
When Lyn got up, however, she told me something which changed my mood utterly. She had been speaking online to a friend of hers who lives in Liverpool, after I had gone to bed. He has very severe CP, and had told Lyn that he’d received news that his care was going to be cut. I checked his facebook page: the poor man was despairing. He needs round the clock support, but now is in agonizing limbo, having to wait a week for social services to tell him how much care he’ll get.
Words fail me. No doubt this is a result of government cuts. What sort of government, what sort of people, could justify cutting the support people need to live, and function as members of society? Suddenly it hits home: if they are so heartless as to cut this man’s support, they can cut anyone’s. The bastards do not care – how could anyone with a shred of humanity do such a thing. This guy has really severe CP, yet they have him wondering whether he’ll be able to get out of bed, eat, go to the bathroom. How dare they inflict so much anguish on anyone, simply to satisfy their petty, greed-based agenda? And all so that they can build their ‘low tax economy’ where their rich pals hoard their money while those who need help are left isolated, alone and starving.
Something must be done – this barbarity cannot continue. With this man’s permission, lyn and I plan to tell the press, although, being controlled by the very bastards pushing through the cuts, I doubt they would bat an eyelid. As enraged as I feel, as much as I want to march up to milbank and end each and every one of their obscene, selfish lives, I know I cannot. All I can do is sit here shaking with rage at the injustice of it all.
the British press is the most biassed and right-wing in Europe
Confirming what I have long suspected, the Canary is reporting today that the British press is the most biassed and right-wing in Europe. ” Asked about coverage of issues like housing, crime, health, immigration, and economics, the British media was viewed [by survey respondents] consistently as having a right-wing bias. And there were always more people who said the press favoured the right over the left.” It’s pretty obvious, really: the reason why the insults to humanity currently ruling us aren’t being given the pounding they deserve is that their right-wing friends control the media. Editors won’t say a bad word about CaMoron and his pals as long as their taxes are low. Besides, they all know eachother; buddies scratching one another’s back. And as soon as someone tries to speak out, or even try to tell the other side of the story, it is instantly derided as left wing or communist. It is sickening how bad things have got. Day after day, I see reports of the suffering the Tories are causing, with people with disabilities dying in their thousands, but none of it appears in the mainstream pres.
A cacophony of wind (experimental poem)
It’s getting windy, here in the city
Bins are starting to shift – oh my, it’s swift.
Really starting to blow trees to and fro;
Bins fly around, causing such a sound
A cacophony of wind, a great resounding din;
Outside she grows: blows and blows;
Maelstrom pounding maelstrom. While, in here, all is quiet
and warm
a snap election later this year?
Although I’m not sure how far I believe it, according to this Mirror report, David CaMoron could be planning to step down and hold a snap election later this year, whatever the verdict of the EU referendum. I must say I find it unlikely: that bastard seems to want to cling to power as long as possible. But the article says he might be intending to catch Labour off guard. If that is so, we must be ready; the tories have already caused too much suffering, and this might be too great a gift to waste.
Why political correctness is a good idea
I just came across yet another buffoon railing against the apparent evil of political correctness, saying how it stifles free speech and so on. Such people annoy me, for they use a principal we all hold dear – freedom of speech – to defend their right to be a bigot. They say we should all have the right to offend and be offended, but it occurs to me that that is to misunderstand and misrepresent the idea behind political correctness. Of course we should have the right to insult one another, but those insults should be due to what one has said or done, not because one belongs to a particular group of people. Point out my failings by all means, but to say those failings are due to me being a man, a cripple, a trekkie or member of whatever other minority is not acceptable as it tars an entire group of people with the same brush. That is lazy thinking; it is not logical. I am a man, I am lazy, but not all men are lazy. Rather than stifling free speech or coddling people, then, political correctness safeguards against such broad-stroke thinking; it stops us relying on stereotypes when making judgements of others. I fear that those who oppose political correctness would prefer to have those stereotypes unquestioned: they want the right to use racial slurs because it’s easier than having to assess everyone on their own merrits.
I don’t like alcohol any more
I don’t think I like alcohol any more. Of course, my tastebuds haven’t changed, and no doubt were I to have a beer I’d probably enjoy it: I don’t like what alcohol does to me, or the power it has over me. I don’t like looking forward to it all week; I don’t like how it tempts me to go to the pub when I know driving my chair back drunk will be dangerous. I don’t like how, whenever I have a pint, I always want more and more. I don’t like how it turns me into an arrogant arsehole who thinks it’s somehow manly or cool to drink until I’m sloshed. I dislike how it makes me resent people who say, after I’ve had about three beers, that I better not have any more. I don’t like how I somehow think that to have a good time, alcohol must be involved. I don’t like the look of sadness and disappointment on Lyn’s face when she sees me drunk; or being to drunk to help her. I don’t like waking up in the morning, knowing I have once again fallen back into childish habits and got myself paralytic, after promising myself I wouldn’t. I dislike having a ‘break’ for a few months, only to get as bad as ever the moment the break is over. I hate it – I hate it all, and I want rid of it. I don’t want anything more to do with alcohol. No more ‘breaks’, as they just have me looking forward to an arbitrary end point, after which the problem starts again. Nor am I going to ‘just have one’, as that doesn’t solve anything – I still retain the taste, pandering to the problem. I mean to stop completely. I’ve had enough of this stupidity, enough desiring a substance which only causes trouble. Alcohol has a power over me that it is time I shook off, and the only way to do that is to stop drinking altogether.
Why aren’t we all out protesting against TTIP?
Before yesterday, I didn’t know much about TTIP. I was vaguely aware of it, but didn’t really understand what it was. Then I saw it being discussed briefly on this RT interview with Kerry-anne Mendoza, Editor-in-Chief of The Canary, and began to wonder why there weren’t currently mass protests over it. TTIP is an international deal which gives private companies to sue governments over legislation which prevents them from making profit. In other words, a company could come in, and if there was legislation or a public body in their way, they could sue the government for millions in taxpayers’ pounds. The greed of the individual would come before the authority of the state; power would be in the hands of the businessman, whose profit would be more important than our welfare. We can effectively wave goodbye to the NHS: under TTIP, a private health insurance company will be able to just wade in and claim that the NHS prevents it from making money – it will have to be broken up. Why aren’t we all out protesting against this disastrous loss of sovereignty? And why hasn’t there been anything about this in the mainstream media? Things like this are making me turn away from news sources like the beeb, and towards independent sites like The Canary.
Success! Daily post challenge complete
After today, I don’t think anyone could ever accuse me of neglecting to update my blog. I’m pleased to say that, as far as I can see, today marks the day that I’ve posted an entry every day for the last year. Please feel free to check the archive and correct me if I’m wrong, but I’m quite sure I have, and I’m proud of it. It wasn’t always easy, finding something to write on here every day, but I just wanted to test myself. I know it lead to me posting any old nonsense on here some days, but I told myself to keep it up, to see if I could stick at it. I’ve tried it once or twice before, but always ended up missing days and having to start again. Now that I’ve succeeded, I intend to keep going, posting an entry daily – it is good writerly discipline – but forgive me if I don’t pressure myself to post every day quite as strongly as I did this last year.
becoming too London-centric
Shortly after posting my entry yesterday, I began to wonder whether I was becoming too London-centric. I had assumed the Star Trek event was going to be in london, either at the Excel or somewhere else, because this is where everything happens, isn’t it? The website had just referred to a ‘UK convention announcement’, though, and I’d somehow forgotten that there are plenty of places outside of london where cool things can happen, too. I love this city, it’s vibrancy and energy; if you live here, it’s easy to forget that London is not the centre of the world. The capital seems to have a self-important buzz to it, and that seems to have infected me. After all, this is were the queen is escorted to her engagements by 007, and where Monty Python performed their last ever gig: surely that makes it the coolest place on earth, doesn’t it? So why wouldn’t the star trek event automatically be in London, rather than a poxy little town like Birmingham? It’s a mentality lots of people here seem to have, and, having livd here for six years, something I too am guilty of.
Destination star trek 2016 will be in…Birmingham?!?
I’m currently feeling rather disappointed and deflated, not because of the deal CaMoron just struck with the EU (which, let’s face it, had probably been reached ages ago and sold to us as a ‘last minute deal’ so the tory p’tahk could look all prime ministerial). The wind has just been knocked out of me for an entirely different reason. A few days ago, I got wind that there was going to be another Destination Star Trek convention in the UK this year, and that the location would be announced today. I got all excited about this; I thought it would probably be in the Excel centre again. If that was so, I was planning to immediately zoom over there to get tickets (having forgotten what happened last time). The chance to meet Sir Patrick Stewart again, making sure I got a photo taken this time, was too good to miss. This morning, I was counting down the hours till noon. Then the news came: Destination Star Trek 2016 will be at the NEC Birmingham. I instantly felt deflated. Of course, I could get myself up to Birmingham if I really wanted, but I don’t think I’ll bother. The cool thing about the Excel is that it’s just over the river, a cable car ride away. Birmingham is more complicated to get to, and given Patrick Stewart isn’t on the guest list, it’s not worth it. What a Pity: I’d been gearing myself up for something potentially awesome, a possible repeat of that incredible Saturday in 2014, only for it to dissolve into nothing. Birmingham? Why Birmingham?
Lost in gender
The more I think about it, the less I realise I know and understand about gender. I’m fine with the basic principal: gender is a social construct which needs to be reread; it is a artificial barrier to be crossed. That’s fine with me, and I’ve been doing that myself, on and off, for a while. Yet when you go beyond that starting point, things get kind of hazy. For starters, some might say this form of nonconformity is itself a form of conformity, inasmuch as I’m sticking to the standard dress code of ‘men’ and ‘women’. It’s also still something of an event for me; something I do every few days for a bit of relaxation or fun. I’m still predominantly a guy; I still conform to the social construction of manhood most of the time. Other people go far beyond this, politicising it into areas I don’t really understand, to be honest. That, I must admit, sort of worries me: am I pretending to be something I’m not, playing in an area I ought not to be? Yet, time and again, everyone in this area faces that same contradiction: how does one reread a gender binary without automatically adhering to one gender or the other? Even if one fully transitions from one gender to the other, is that not still a type of gender conformity? (It’s not that simple, of course – transpeople don’t transition just to make a political statement). Others have postulated a creation of a third gender; but even then the features of any such gender will inevitably be set down in relation to the other two. The question I find myself asking is, how do we escape a naturally occurring binary? But to say it is natural contradicts the assumption that gender is a social construct. The more I think about gender, the more lost I get an the less I realise I understand. At the same time, I think the ‘each to their own’ principal applies: I may not understand gender, nor why I like dressing up. I just do, and if by doing so I add to the infinite diversity of humanity, then that must surely be all to the good. I am who I am, whether I’m in trousers or my pink tutu; and what applies to me of course applies to anyone else. Whether you call me a man or a woman does not matter – they are just labels, as superficial as any other.
Jeremy backs Jeremy
I’m so astonished and pleased to see this quote being attributed to this man that I’m gonna repost this image here. I just found it on facebook; I only hope it isn’t a hoax. I never thought Clarkson would be a Corbyn type of guy.
[img description=”undefined image” align=”centre”]/images/clarkson.jpg[/img]
a terrible week for the tories
It has been a terrible week for the tories. According to this piece in The Canary, the tories have suffered no less than nine humiliating defeats: it started on monday, when the Lords shot down IDS’s attempt to redefine child poverty, presumably in an attempt to hide the extent he’s making kids suffer. Then they had to abandon their proposed benefit cap for cares after it was ruled to be discriminatory and offensive by the high court. And then, of course, there’s their historic defeat over the bedroom tax. The list goes on, but the odd thing is, you would not know it if you stuck to the mainstream news. The beeb, for example, seems to be making out it’s just business as usual. Where are the calls for resignations or inquiries? Came there none. How can we possibly get rid of these jokes, these insults to humanity when, thanks to media bias, they come away from a week like this virtually unblemished.
A false dream?
I have long dreamed of a united world; a single world united as one nation. Yet, discussing this with Lyn recently, she pointed out that such an enormous state would be impossible to control. She was right: how would elections be organised, for one? It would probably require some kind of dictatorship where the diversity I love would need to be stamped out and the world would adopt a single uniform culture. Yet that would imply we cannot be united, and must remain divided into nationstates. However,follow that logic through and one must oppose the EU too, as it is born of the same idealism. Could I therefore be wrong about the European project? I dream of a world united without borders or devision, where humanity works together towards common goals; yet such a state would be so big that it could not possibly be democratic. The same could be said of europe as it moves towards ever closer union. After all, how could one government represent all humanity in it’s rich diversity. If that is so, then my utopia in which humanity’s petty devisions and disputes are outgrown cannot possibly be realised, and we are forever doomed to squabble as petty nation states.
Disability hate crime is increasing
I received some very worrying data from my colleagues at GAD yesterday. According to this, disability-related hate-crime has seen a sharp rise. ”15% of people have witnessed at least one hate crime or hate incident based on disability in the last year, according to research released today by the Holocaust Memorial Day Trust on Holocaust Memorial Day (Wednesday 27 January 2016). In total, over a quarter (27%) say they’ve witnessed a form of hate crime or hate incident in the last year, defined as acts of violence or hostility directed at people because of who they are or who someone thinks they are. More than two thirds (69%) of those who’ve witnessed abuse of this kind say they regret not challenging it.” The report also states that abuse towards minorities on the whole is on the rise. Again, I can only add that it is a sign of the times: with resources being cut, those the tories and the right-wing press portray as scroungers are going to be ostracised and victimised more and more. Fortunately I haven’t experienced much abuse, but I’m beginning to think, given the way social attitudes towards people with disabilities are heading, it’s only a matter of time before I do.
woman with CP forced off a British Airways flight
I love to travel, and go a-roaming whenever I get the opportunity, so I find this story in today’s Independent quite disheartening. A woman with CP was forced off a British Airways flight from London City Airport to Glasgow last october. ”ParalympicsGB athletes are being encouraged to boycott British Airways when flying to the Games in Rio de Janeiro this summer, after the airline allegedly forced a disabled passenger off a flight and broke her electric wheelchair…She was told to leave after staff realised they would not be able to fit her electric wheelchair in the hold, despite being informed 72 hours in advance that she would be travelling with it.” As tenuous a link as this may seem, I suspect this is symptomatic of the times: with the cuts beginning to bite, society will see people with disabilities as more and more of a burden, so we can expect more crap like this to come.
No uncle, I am not giving the Reith Lectures
My parents just paid us a visit. It was good to see them, catch up with family news and so on. As usual I came in for a bit of a nag for not writing anything more indepth such as magazine articles, but I suppose it’s true that I could write things with a bit more substance to them. Blog entries are all very well and good, but you can only go so far with this form of short prose.
However, Mum and Dad also told me something that made me raise an editorial eyebrow. As you may know, The Reith Lectures are this year being given by Stephen Hawking. When in London my parents stay at my grandmothers’; my uncle is also there at the moment. This morning, when he heard Hawking on the radio, he apparently called my mum ”Come quick! Matt’s on the radio!” It was, of course, an innocent enough prank, but I must say it gets my goat that people still liken me to Hawking just because I use a communication aid. Joke or not, it belies a serious problem. Other than the fact we both use VOCAs, I have very little in common with Hawking: I’m a writer, blogger and film maker, not a physicist, so why would people think it’s acceptable to liken me to him just because I supposedly sound like him? I’m not trying to get at my uncle, but the supposition which underpins his joke worries me. It is essentially grouping a set of people together because they share a common trait, and history teaches us that that can be a big mistake.
Adele Drake’s birthday bash
Yesterday was an incredible day. When, on Wednesday, Lyn told me that we were going to see Adele on Sunday, I assumed she meant we were going to a concert. I didn’t know Lyn was into her, I thought, but maybe she’ll perform the theme from Skyfall. Fortunately, Lyn had something far more awesome in mind. Yesterday was adele Drake’s birthday, and we had been invited to a get-together at the Royal Festival Hall on the south bank to celebrate.
Adele Drake is a remarkable woman – one of those people who stand out, and whose life stories makes one’s jaw drop in admiration and amazement. She once headed Drake Music, which enables musicians with disabilities to perform. Lyn was involved in it, long before I met her, which is why we were inited yesterday. It was great to see L, chatting away to old friends. I tried to keep to one side, as the day wasn’t about me, but socialite that I am I ended up getting into things. I spoke to adele quite a lot, even showing her my thesis on my Ipad.
By the time it came to go home, I was left wanting more; there were some truly brilliant people there yesterday. As usual, drake music has had to cut back a lot, but I got the impression yesterday that a few plans had been set afoot. It felt like the beginning of something, or at least a restart. The warm afterglow of the Paralympics having long since fizzled out, people with disabilities are becoming increasingly marginalised, making projects like Drake Music and indeed the Paraorchestra all the more important. Thus I hope something comes out of yesterday and can’t wait to see what it is.
Charlton vs Blackburn Rovers
I suppose you could say nothing unusual happened yesterday. After all, what is unusual about two mates going to a football match? It’s something lots of guys do of a Saturday afternoon. Yesterday, then, me and James went to see Charlton play Blackburn Rovers. We had arranged it over facebook, and I’d razzed down the hill a couple of weeks ago to buy the tickets. Yesterday, James met me here at two, pushed me down to the Valley, and we had a beer before watching a somewhat unremarkable game which ended in a one all draw. I was back here by five, rather cold and looking forward to dinner. Nothing special really – similar stories could be told about people all over the country yesterday. Going to watch a football match with a friend is quite a normal thing to do. Why, then, do I think it’s so cool, and feel so grateful to James for taking the timeout to do it with me?
Anotherplea for humanity goes unheard by the Tories
I’m furious after just reading the closing line of this Welfare Weekly piece. The article is about an open letter from charities such as Mencap to the DWP, asking Iain Duncan-smith to urgently rethink his cuts to Employment Support Allowance. It details how, instead of helping people back into work, such cuts leave them more vulnerable and isolated. ”Jan Tregelles, who chairs the DBC and is also the Chief Executive of Mencap, said the poll ‘should make the government listen, especially when this cut seriously undermines their plans to halve the employment gap experienced by disabled people’. She said: ‘Not only are disabled people telling us loud and clear that this cut to ESA will make their lives harder, with both their health and chances of returning to work being harmed, but we also see how the general public are deeply concerned by these cuts to disability benefits’.” But instead of listening to such concerns as any human with a shred of compassion would, the tory scumbags dismissed this letter as scaremongering. I can barely believe their inhumanity or their arrogance. As long as they can hoard their money and cut tax, they don’t care who suffers or how many people top themselves after being driven to despair because of the cuts. On top of that they have the affront to claim to be making things better. The tories sicken me.
a common ancestor of the Chinese and Indo-European?
I just watched the first part of the beeb’s new series on the history of China, and found it fascinating. China is a place I don’t know much about: it just seems so different to what we’re accustomed to in europe, especially in terms of it’s language. The question I find myself pondering is, is there a common ancestor of the Chinese and Indo-European languages? They seem so different, you wouldn’t think there would be, but that would imply human language evolved twice in two separate places. It’s just one of those odd questions which has me pondering. I suppose we’ll never know given any such ancestor tongue will inevitably pre-date records. Something to look into nonetheless.
Language website has spelling error
Far be it for me to criticise anybody for their spelling, but this Mirror story is too funny for me not to flag up. A home office website intended to help migrants learn to speak english was criticised for spelling ‘language’ wrong. Talk about epic fail! It has been called ‘beyond parody’. Of course I’m in two minds about the whole concept: on a purely practical level, most people get by more easily when they speak the local language; on the other hand, this move whiffs a bit of the government trying to dictate to people, demanding that everyone conform and use English. Either way, you’d think that if they were going to make such a website, they would take a little more care with their spelling.
A wheelchair snowplough
It’s raining buckets here in Charlton, and it looks like I’ll be staying in today, but at least we aren’t having the epic snowstorms forecast in america. In those, people like me and Lyn really are stuck at home – it often becomes quite a problem. However, I just saw this cool Huffington Post piece about a man who has converted an electric wheelchair into a snow plough. With his father and brothers’ help, 30-year-old Tim Taylor has converted what looks like a standard powerchair into a snowplough, complete with scoop at the front. The article does not say whether they had to soup up the motors, but I think they would have had to. Nevertheless, if weather over gets much worse, this is something I’d have to consider investing in, too.
Two captains shouting
Playing about with my film studies hat on, I created the following image simply to juxtapose two highly climactic moments from the Star Trek films. In a way it occurs to me that they mirror each other, a fact I find interesting enough to note.
[img description=”undefined image” align=”centre”]/images/two captains shouting.jpg[/img]
Freak shows
Last night I watched quite an interesting BBC 3 documentary about freak shows in the US, in which ”actor and presenter Adam Pearson explores the world of freak shows and meets people who use their medical conditions to educate, entertain and make money.” Far be it for me to deny anyone a chance to make a bit of cash, but I found the programme extremely troubling. The fact that such shows, in which essentially disabled people put their bodies on display for all to gawp at, says a lot about how people with disabilities are still perceived. Judging by this program, things have not come on much since the nineteenth century. Of course, you could argue, as Pearson does, that it is a matter of taking control and ownership of one’s body; these people do what they do because they are proud of who they are. Yet it struck me that you could also liken it to selling your body, and surely there are better ways to make money than parading around as a freak. I’m no stranger to the odd bit of exhibitionism: Spastic Ballet attests to that; but as I wrote here, spastic ballet was supposed to be ironic. It was also a one-off, and not for money. What the people in this program were doing was completely different, and I must say it left a bad taste in my mouth. Playing with perceptions of disability is one thing; deliberately conforming to those perceptions in order to make money is quite another, and does the rest of us a disservice,
The Trump ‘debate’ 2
Following up on what I was saying yesterday, I just found this short bbc video juxtaposing footage of the debate in parliament yesterday with clips of Trump at one of his rallies. I watched part of the debate, and found it fascinating. It was reasonable and reserved; most of the speakers thought Trump was a total arse (one even calling him a wazzock at one point, which I love) but saying we could not ban him from the country for x, y and z reasons. I found myself wondering how much coverage this debate was getting in the states, if any. Here we brits were, debating the merits of banning a leading presidential candidate in the ‘mother of all parliaments’, in the most refined, civilised language – did the americans even notice? Would they care? I’d bet they wouldn’t give two hoots what happened in Westminster Yesterday, but just got on with their flag-waving as Trump’s increasingly fascist-looking gravy-train rumbled on.
The Trump ‘debate’
MPs will ‘debate’ whether to ban Donald Trump from the country. I put the word debate in inverted commas, of course, because it isn’t really a debate. How could they possibly ban him? The guy’s a jackass, but that’s no reason to ban him from the UK. There’s also a chance that he’ll be the next president of America: if, FSM forbid, he is, such a ban might prove very problematic. I loathe Trump: I think him no better than a reactionary blogger* or talk radio host, spouting baseless opinion after baseless opinion, assuming an air of authority while knowing absolutely nothing about what he’s talking about, but that’s no reason to ban him from the country. This afternoon’s debate is a foregone conclusion, then; as much as we’d all like to teach the p’tahk a lesson, we all know what the MPs will decide.
*I am fully aware of the irony of me saying this.
Couple with CP become parents
It’s from a few days ago, but I think I’ll link to this Mirror story today. It’s about a couple who both have quite severe CP raising a baby. Of curse, it’s the type of story editors shove in papers to make readers go ‘aww’, but I can’t help but think it’s pretty cool. Despite doubts from doctors – there were probably many who thought the baby should be taken into care – Sarah Redmile and her boyfriend James Ellis are now successfully caring for their baby girl. In the article, they explain how they work together to overcome the problems of parenting. It’s another perfect example of how, with adequate support and enough determination, we cripples are just as capable as anyone else. Mind you, now that I think about it, I have no idea how I would go about trying to change a nappy.
Why Spectre sucked (if it did)
Putting my geeky Bond-fan back on today, while I wasn’t that unimpressed with Spectre (I need to rewatch it, mind you) I’ll think I’ll flag this rather astute, observant video up explaining why the film was flawed. The guy in it makes quite a few good points, such as shoehorning Blofeld in as the puppetmaster behind everything in the last three films was simply lazy story telling. I agree with much of what he says, although after the excellence that was Skyfall, any follow up was always going to come in for criticism. The question is, where do they go with the Bond series now? The guy in the video says a line must be drawn under Spectre, and everyone should pretend it never happened. But I can’t see that happening: Spectre set story-arcs in motion which cannot now be ignored. Yes, when you think about it, Spectre is quite a flawed film, but I think you can salvage quite a bit from it, and I still think Daniel Craig is the best actor for that job.
Kelvin Mckenzie should apologise for his comments on Question Time
I have stopped watching question time as it just made me shout, scream and put my fist through the tv every Thursday evening. It seems I was right to do so, as I just came across this Huffington Post report on last night’s program. Kelvin Mckenzie apparently thinks we are now ”better off than ever” under the tories, and that rather than struggling, most Britons are ”thriving”. How that piece of filth can say such things is beyond me. Day after day I see reports of the suffering the tories are causing; by some counts, the death toll is sickening. But Mckenzie and the vermin like him can blind their selves to that; as long as they are okay and don’t have to pay much tax, the rest of us can starve for all they care. On top of that, the scumbag had the gall to say those who speak out against the suffering the Tories are causing aren’t living in the real world! How arrogant can this man be? If you ask me, that piece of shit should apologise for the hurt and offence his moronic comments caused last night.
The advantage of the Ipad
A couple of days ago I had a meeting over in Woolwich with a lady from UEL. She wanted to interview me about how I use my Ipad as a communication aid, particularly with regard to my volunteer work at school. I am apparently to be some kind of case study in a EU-funded project. The meeting went well; I explained that, before Lyn introduced me to Ipads, I used to use a Lightwriter, but I now find Ipads much more versatile and useful. It’s not perfect as a communication aid, but the fact that I can do so much more with it, from checking my email to updating my blog, means it has many more advantages.
She then made an observation which really stuck in my mind: one advantage of the Ipad is that it is ‘normal’ – it is a tool everyone else uses, disabled or not. You don’t stand out using one. That chimed with me, but it also reminded me of a debate I once had with a fellow communication aid user. They stubbornly objected to me using the Ipad as a VOCA, saying it is better to use specialist equipment. The more people us Ipads, they reasoned, the more likely Lightwriters and Dynovoxes will stop being made. It was as if they wanted the specialist equipment; almost as if they wanted to stand out. Thus the contrast between the two positions struck me as odd.
The logic is, of course, faulty: certain people will always need specialised equipment, so I think there is little chance that using Ipads will lead to their demise. It boils down to personal preference and need. I see room for both solutions. I think there was an element of their trying to dictate to me what equipment I should and should not use. To some disabled people, such equipment has become woven into ideas about identity; they want it to be special because it makes them special. But if, like me, you just want to be normal, why not use something everyone else uses? That, to me, is the real advantage of the Ipad.
My suggestions for an anthem or England
I just got wind that MPs are expected to vote later on the idea of England adopting an official national anthem. While Scotland and Wales both have their own anthems, England just has God Save the queen, but that denotes Britain as a whole. While they’ll probably be boring and go with something like Jerusalem, for what it’s worth I think the English anthem should either be this or this.
Jon White is Tripadvisor’s photographer of th year
Rather cooly, Jonathan White, whom I know from South Cheshire College, has won Tripadvisor’s Photographer of the Year award. That means he is the top photographic contributor to the world’s biggest travel website – I’m impressed! Mind you, given he has posted 30,000 pictures to the site it’s not that surprising. Jon was my PA when we went to Berlin in 2004, and he was keen to take photos even then.
How did David Bowie creep under my radar?
You would have thought that someone like me would have paid more attention to david Bowie. Given my taste in clothes and attitudes towards gender, you would have thought I would reference bowie regularly. Watching the news articles and tv programs about him last night, I began to wonder how this man crept under my radar. How did I never notice David Bowie? He stood for and encapsulated pretty much everything I stand for and try to say in my art – gender play, and the challenging of traditional gender boundaries. The truth is I just had him down in my mind as some old eighties pop singer, and never stopped to consider what he was saying. I’m rather embarrassed to admit that now. Well, now I know a bit more about this fascinating character, it’s time to put that right; it’s just a shame it took the announcement of his death for me to become aware of him.
A tragic mistake
I know I shouldn’t find something so tragic so amusing, but I just read that a radio announcer for Heart FM this morning accidentally announced the death of David CaMoron rather than David Bowie. She said ”David Cameron has died,” before quickly correcting herself and replacing the Prime Minister’s name with David Bowie. Had I heard that rather than seeing the sad news on the bbc website, I’d have been rather disappointed. Bowie was a great musician; I’d frankly rather have him still about than that insult to humanity CaMoron any day.
Level crossings
I think I ought to flag this story up about a woman in america who is calling for changes to railway crossings. ”A Minneapolis woman is calling for safety changes at light rail intersections to better accommodate people in wheelchairs after a man crossing the tracks in his wheelchair was struck and killed by a train.” There is a level crossing just down the road from us. Although I rarely use it as there is a perfectly good tunnel under the tracks nearby, this has always been a fear of mine. It seems I was right to avoid level crossings; they are dangerous for wheelchair users. Perhaps after a tragedy like this they will be made a bit safer.
The CDG – traitors to the disability community
My jaw dropped and is still on the floor, having just come across this, the Conservative Disability Group. It was mentioned in a DNS article, but I am frankly flabbergasted that such a group exists. The hypocrisy is staggering. At a time when CaMoron and co are causing so much misery to disabled people, this group defends their actions. How can anyone be so treacherous? They claim their aim is to ” promote equal opportunities and independence for disabled people.To enhance the Party’s understanding of disability issues and to offer advice and information to Party members”, but they are obviously being used by the tories in order to add some kind of legitimacy to their actions, enabling them to claim they have support from within the disability community. Thus members of the CDG are puppets of our oppressors, collaborators who put their own interests above those of other disabled people. Can they not see what the tories are doing to ‘us’, or do they simply not care? Their blatant treachery and selfishness horrifies and enrages me.
how can CaMoron be so flippant about his crimes?
People with disabilities really are suffering under the Tories, but CaMoron has dismissed a UN investigation into it’s human rights abuses as ”not all it’s cracked up to be”. For him to be so flippant about something so serious appalls me. He and his government have caused the deaths of thousands, yet he goes about dismissing any criticism with an ”I know best” attitude. The air of superiority he has makes me begrudge him his every breath. He seems to think he is a great man born to rule, when in fact he is a criminal who should be tried for cries against humanity.